My husband had surgery for adenocarcinoma 5 1/2 years ago and was considered to be cured of his disease. In June he had what we thought would be his final scan only to be told that he had a leison on his liver and spots on his lungs. We have waited 12 weeks to see an Oncologist as the Clinic kept cancelling appointments , biopsy's were delayed ( not enough qualified staff apparently) , test results not back etc etc ...we even had an appointment cancelled whilst we sat in the clinic. On Tuesday we eventually saw the unpleasant Oncologist ..( not just my opinion ) He stated that he thinks the cancer is "new" so not related to the original tumour. He said the tests showed my husband is not eligible for targeted treatments as he does not have the mutations and that, due to his poor kidney function he can't have chemotherapy either. So, after all these weeks of anguish we have been left with no treatment plan and no idea what the future holds. One test apparently failed so a new liver biopsy has been organised but the oncologist feels this will make no difference. We told him we want a second opinion and have asked our Gp to arrange this, probably at the Royal Marsden. Can anyone recommend a good Oncologist , at the Marsden or anywhere else in the Berkshire/ London area? Finally, has anyone co -paid for a drug that the NHS won't fund? i have read the NHS policy and it seems to be an option..I am think particularly of Keytruda .
Thank you for any advice you can give x