I've posted before on here but not for the past 6 weeks.
Recap..my mum then 77yrs was diagnosed with lung cancer and liver cancer with Mets to her spine, pelvic area.
She was diagnosed in Oct last year and underwent 4 chemo sessions.
Her last chemo was in Feb this year.
A week after her last chemo she underwent a further scan which said that the cancer had shrunk further and for my mum to get on with normal life as they monitor her.
8 days later she cut her head open needing 20 stitches after going to use the bathroom and then became dizzy and hot.
Whilst admitted into hospital they kept her in overnight and did stays of her head and chest. Her head came back with no Mets and her chest x ray showed a small blood clot as a result of the chemotherapy and was started on blood thinners.
She also started bone injections to strengthen her bones after the chemotherapy.
6 weeks ago she was complaining of pain in her lower back, crying with the pain and wishing she was dead because it was that bad and she couldn't eat or sleep with the pain.
Eventually as our GP surgery couldn't keep on top of her pain she was admitted into hospital and has been there for the past 4 weeks on their palliative pain management team ward.
They have looked after her very well and she has undergone various scans and mri and they found that the cancer Mets had spread to her upper spine and the lower pain was caused by compression due to the cancer.
They started 5 treatments of radiotherapy which she finished the last one 10 days ago.
She still has pain abielt not as bad and they took her off the pen drive of morphine and now administering oxymorphine in tablet form one of a morning and one of a night.
If she requires pain management throughout the day they top it up with the liquid form.
My mum has lost a further 10lbs which she couldn't afford to lose. She had no appetite and were having to coax her to eat.
She been on the tablet form for nearly a week the past couple of days she's been experiencing nausea and vomiting.
She is to have a further ct scan in the next 3 weeks to see if the radiotherapy has worked.
The past few days apart from the nausea and sickness (She swallows the morning tablets then brings them back up again) she's started to look so much better. She has colour to her face and they have been working with her by giving her physiotherapy to help build on her up.
I was told 2 weeks ago to make an appointment to see her Dr at the hospital and when I went in that evening the Dr wasn't available but the sister who I hadn't seen before was in.
She took me to one side and started explaining where the cancer was and were it had spread then grabbed hold of my hand and said spend as much time as possible with your mum as she's got 6 weeks.
It felt like I'd been hit by a bus.
I collapsed sobbing uncontrollably when I got home and told my husband who was just as shocked as me because she's been showing some signs of improvement.
He contacted the hospital and was out through to the clinical director/manager who had regretted the way I had been told and said she would complete an investigation and get back to us. We're still waiting.
The following day the same sister took my husband and I to one said and said I'm sorry your mother has months and months?
We finally met with the Pallitive Dr on Monday who said that I shouldn't have been told that as they do not know how long my mum has and they would never say that to the family?
She said from a palliative pain management point of view she's ready to go home, from an OT assessment she's ready to go home and the care package team are on standby. They are just waiting for the physiotherapy update.
The Dr said that she will be signed over to the community palliative care team.
Also she had spoken to my mum's oncologist who said that depending on her ct scan and if she's strong enough they may consider further chemotherapy.
I personally don't think her body can take much more.
I've also noticed that she gets quite confused and sometimes looks very distant I think it could be the medication but the Dr said that they will be doing a head scan as they have noticed this as well.
Now I've just received a telephone call from the nurse who said she's been advised to contact me by the Dr to discuss details 're the care package in preparation for her to be discharged home, but then said she wasn't too could today after being sick and feeling dizzy?
Now I'm very confused and anxious is the sister right with her information and are they sending her home to spend time with the family?
Can they still send her home when it appears she still not fit enough?
Can a sister give you this information on life expectancy or does it have to come from the Dr?
I feel I'm being mislead ?
What's your thoughts on this?
Also the fact that she has no appetite and she gets confused and they are sending her home like this?
Thanks in advance x