can you help a researcher about remote/decentralised studies and how it feels to be part of that?

[JanetteR57]

I was recently interviewed by Eoin Gamble, a PhD student researcher in Ireland who wants to contact people who have taken part in remote/decentralised studies for any conditions. Having taken part personally in 2 remote monitoring physical activity studies for lung cancer, I took part in his survey which was painless and took under an hour - but much of that was suggesting groups to contact! I thought others may have taken part in similar studies may be able to help his work to help patients.

below is a brief outline regards the research aims etc. Eoin is happy to answer any questions you may have. [e-mail]

"My research is an independent academic research focused on improving the technology experience for patients involved in remote clinical trials. To improve patient experiences it is crucial to understand the patient experience when interacting with technology throughout the process. My research aims to bridge this gap by gathering insights from those who have taken part in these trials. I’m seeking to connect with patients who may have taken part in a remote trial for a short interview. the research will be published in a high-impact journal ensuring the patient’s voice is heard and given the visibility it deserves.

The research is ethically approved by my university - University College Cork, Ireland and part of my PhD is the space of Behavioural Science and Human-Computer Interaction (HCI). All data will be handled following ethical guidelines and institutional policies to ensure confidentiality and compliance with university regulations. It is a voluntary study

Any help will be greatly appreciated and I'm happy to answer any questions you may have. Below is the email and link to the screening questionnaire. Thank you for your support in advancing patient-centred care.

Have you participated in a Remote / Hybrid / Decentralised clinical trial and used technology during your experience?

We would like to hear from you! With the recent shift towards remote clinical trials, it's crucial to understand the patient experience when interacting with technology throughout the process. Our research aims to bridge this gap by gathering insights from those who have taken part in these trials.

By sharing your experience and insights, you’ll contribute will be published in a high-impact journal that ensures the patient’s voice is heard and given the visibility it deserves. Your valuable insights will help shape and enhance future decentralised clinical trials, creating a better experience for all patients in the future.

If you are eligible, you will be invited to participate in a brief online interview lasting less than an hour.

If you're interested in taking part, please follow this link to complete a short 1-minute questionnaire to check your eligibility. Thank You. Eoin

ucc.qualtrics.com/jfe/form/...

If you can help Eoin please respond to the survey link. Thanks in advance for your help. If you know others who could help, please circulate. Thanks Janette