This may be a long post as it's been a stressful few days! I am interested to hear of anyone's experience of brain mets? What were the symptoms?
My mum who has stage 4 Adenocarcinoma was admitted to hospital on Saturday with confusion and incontinence. She had seemed a bit unwell throughout last week (very tired and going to the toilet a lot) but we had put this down to stopping the 2mg of Dexamethasone she had been on for about 4 weeks. She had to come off this prior to starting Nivolumab on Wednesday. Anyway she was diagnosed with pneumonia and a urine infection and given strong IV antibiotics and fluids for dehydration. However the confusion (or delirium) has not improved since the infection has gotten slightly better. The Dr who looked after her over the weekend said yesterday that he was not concerned by the delirium and explained that she is having a slow response to the antibiotics due to her other health conditions. Last night she was moved to a different ward where she was wandering through the night and so today she had a head ct scan to check for possible brain mets. We will get the results tomorrow but I am just so anxious! My mum knows who she is and recognises family but it's almost impossible to have a conversation with her and it's as though her mind is racing and she can get quite agitated but then switch to very sleepy within minutes. This confusion started quickly on Saturday and does seem to tie in with the onset of infection but also with stopping the steroids. I am surprised that they are considering brain mets as I thought that this is something that would develop slowly?
Any advice would be appreciated!