The Roy Castle Lung Cancer Foundation
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Mets to the brain

Hi everyone,

I posted about 10 days ago about my mum have mets in her liver! She returned to the Marsden today to get the devastating news she now has mets in her brain!! Although only small it’s still now in her brain!! I wonder now if this makes her prognosis less than before, I’m not sure my mum asked them, I feel useless and wish I could do something for her!! I try to stay strong around her as she is dealing with enough without my constant blubbering. My mum is my world, she is my best friend and my rock!! I feel like my world is ending!

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You are doing your best to stay strong but try to visit your mother in hospital when there's a chance the doctors are doing their rounds.

In my circumstance, I'm the mother and it was wonderful when my daughter was there when the doctor took me to the 'quiet room' to give me the next bit of bad news. I was feeling quite woozy at the time with fatigue and painkillers so not taking it all in. She was also able to ask the questions and clarify points, better than my husband would have managed (but then, she is a teacher).

You should be able ask the staff nurse for a word with the doctor and they can arrange it. I think the hospital staff would be glad for you to take some of the burden in your mother's care and it's the sense of feeling absolutely useless (as I was with my own mother's cancer) that is soul destroying. It brings tears to my eyes, thinking about the fear and pain you are both currently suffering, but this is the most important time for you to be there.

I hope you don't mind if I 'follow' you as I didn't see your original posts.

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Hi Jabb,

Thank you for your reply, either myself or my sister goes to the hospital with Mum and dad for those reason you said to ask something they may not think of or absorb it to explain again when we get home!!

Luckily if you can call it that Mum is at home, she went to the Marsden to consent to her palliative chemo (topitocen sorry if wrong spelling) and was told the results of her head CT and stupidly I didn’t go with her and dad!!

It’s devastating and like you said soul destroying, she has mets in her liver also which we was told about 10 days ago!! It’s just so unfair, I know everyone think that’s but She’s 53 years young has so much more she needs to do, so many memories we still have to make!!

Sorry feeling very emotionally charged

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Oh bless you sending lots of hugs how terrifying for you all 😢 I agree ask to speak to someone my mil is 89 and I’ve had to go appointments with her as she doesn’t listen and turns off she doesn’t want to know and tbh who can blame her.

And personally I’m the same I take in No information when I’m anxious (which is anytime medical stuff happens to me) and that leaves me more anxious so on personal experience it would be great to have someone to ask questions and know more that I can’t or dare no ask myself xx

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Thanks Mumof5,

I will be calling to speak to her specialist nurse tomorrow!!

Think I need a few days to digest what’s happening!

Xx

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Sorry to here your news it can be very scary and what the others said is a very good idea ask to speak to the doctor or have you got a Macmillan nurse they are very helpful too .Have they told you how many palitive radiation treatments she is going to have has she got more then 1 met in her brain .my husband had lung cancer with brain mets he had 4 .and was given 5 palliative radiation treatments he said they wasn't uncomfortable or anything when he had them hope everything goes well for you big hugs x

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Hi miasam,

Thank you for your reply! They said it’s a small 1 cm met on her brain! She had previously had 10 days of radiation to her brain as a preventative measure! They haven’t mentioned any more radiation Just palliative chemo tablets for now and see how she responds!

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Hope all goes well for you and your mum cancer is such a horrible thing x

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Thank you! Hope all is well for you! Your right Cancer is horrible, destroys families x x

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I feel your pain we are pretty much in the same position. It’s a horrible journey Hun that I wouldn’t wish on anyone.

Sending hugs and good luck 🍀

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My husband passed a way 11 weeks a go .he died at home in his sleep .cancer is really crap it takes so many .xx

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Omg I’m so sorry to hear that!! Cancer causes such devastation!! My thoughts are with you xx

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How’s your mum getting on? Hope all is well. X

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Hey, not great, so the brain mets have continued to grow and she has more lesions now!! She’s doing well in her self but its scary!! Xx

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Oh bless hun I’m sorry sorry it’s so hard isn’t it.

My mum in law had 2 lesions that she had gammer knife surgery to. Awaiting the results but her symptoms, losing balance etc have got much better almost gone bar a few little memory problems.

Can your mum have gammer knife of whole brain radiotherapy?

Good luck🍀

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