Have had CT scan & MRI brain scan. Sheesh that was like down town Beirut on a Saturday night. That was done as emergency & I managed to enveigle them to do both in the same day. Ibviously hadn't occured to anybody that this was possible, but it was & I did...results!! Not that it made much difference as I now have to wait for a month while the lung & the brain guys see if it is worth operating in my brain. If the lung cancer has spread then they won't bother. That's what I heard. This has been the worst time so far. When I heard 'Brain surgery' I thought oh no! Not going there. Can't say hospital where very reassuring either. Told that it was a big thing & they wouldn't consider if any spread to liver, or elsewhere from lungs. My alternative doctor told me that Gamma knife us not such a big deal & is very successful so I should go for it if offered. In the meanwhile I have been taking lowest dose if steroids, which have helped with symptoms. I can now get my legs in correct orbits of onesie without tripping myself up & falling on floor. The bruises are disappearing from bouncing off door jambs & I am no longer a danger in the supermarket with my shopping trolley. Lots crockery has been smashed in kitchen, but was fed up with it all anyway. Maybe I should go for plastic. Have no cut lowest dose of steroid in half & supPlementing with Boswellia which works well. Driving is off the menu & I have started a live affair with my bus pass. Fortunately the bus service where I live is really good & with help from kind friends I have found a new freedom. No worries about parking, speed cameras, police following me. Everything takes longer & you have to plan a bit more-but after 47 years driving, I'm really surprised at the lack of a down side. Bus drivers are really jolly, although they do tend to slam on the brakes a but fast, which I will have to have words with them about. It's like coming back into a world I'd forgotten about. You see so much more when you aren't driving, it's quite an adventure. People talk to you and I do enjoy people watching whilst riding the buses. I make up stories about where they are going and what they are doing. I'm sure they would be horrified if they knew & zi'm probably totally wrong.
I do have a question if anybody would be so kind to share any experience they have had with Gamma knife. It is still worrying me. I have gad my poor little brain for a number of years and we have got used to each other. I do worry if it would cause personality changes or other things I might not even have thought of. Would be grateful for any positive info.
Hope everybody is keeping as well as they can & enjoying each day.