Hi again. I have just completed three week course of combined ozone & Vit C efflusions. It meant that I had to stay away from home as it is a two hour drive to Tywford where the clinic is situated. Decided to spoil myself a little and instead of doing Bed & breakfast I rented a darling little character cottage two mins walk from the clinic. Circa 1450 but with all mod cons, including a friendly ghost who popped in to see if I was okay the 1st night-but didn't see again. It was an animal of some kind. Found out later that the cottage was oldest in the village & used to be the dairy-so that figures. Was a bit worried about the IV as it does necessitate a daily canular being inserted & my veins have been naughty historically. No need to worry, the nurses were wonderful with their needle skills & used paediatric needles to reduce any bruising. After 15 infusions I didn't have a bruise to show. It was minimally invasive, treatment took about 2hrs each morning. Some days I felt a little shaky & cold after the treatment and it did cause an increase in the cough & a little more pain. They did give me steroids to reduce all this, but after a week of no sleep & feeling 'wired' I begged to be taken off them & was given Boswellia a herbal remedy which although not as effective as steroids I preferred as I managed to sleep. The main side effect was tiredness, which is cumulative as the weeks go on. By the last week, I found myself nodding off in my soup. I found this totally manageable & just slept it off. Apparently, 15 treatments in 3 weeks is quite an ask for the body. A lot of people can only manage two a week, because of the increased pain & tiredness. I just wanted to get it over with, so gritted my teeth. I intended to treat it as a kind of holiday and as there are so many places of interest & natural beauty nearby I was looking forward to getting out & about. After 1st week this wasn't an option to-so I just pottered about. I have found out that Vit.C & Ozone therapy can be used alongside orthodox treatments, to minimise side effects. There were people who were doing this, but then others like me using as a 'Stand alone' treatment. I am home now & have been told that the tiredness will continue for two further weeks, so far this seems true. I have an appointment in a months time to see if and by how much the tumour has shrunk. So March 2nd is D day. My GP prescribed an inhaler to try & control the cough Qvar 50 which is also steroidal. Find this very helpful. Apart from the fatigue I am feeling pretty good. Very impressed by the clinic. Also managed to attend a wedding in the middle of the treatment & ate lots of cake-bad Laura!! Now it remains to be seen how effective the treatment has been-will update when I know more. I was very close to earthquake in Winchester a 2.9 all I heard was two very loud bangs and didn't know what it was until 10.00 news informed me.
Best Wishes to everybody fighting this rotten battle.
Laura
xx
Photo is of me on last day of treatment.
Written by
Scaredlady
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You seem to have coped extremely well with the treatment,I have never had any so I can only try to imagine what it must be like.I hope you get good news on March the 2nd.
Hi Stewart, apart from the time I had to set aside, it really wasn't too awful to go through-so no brownie points for me on that score. You don't know how I can turn my picture the right way up do you? It was right way when I posted. Think I've gone Aussie? Thank you for good wishes. Will let you know the outcome.
I know from reading your earlier posts you chose this route instead of the chemo. I'm glad its seems to be doing some good. My chemo is due to start tomorrow as that is what I decided to do. I really don't understand enough about the other options available. I'm hoping to be one of the lucky ones and not get too many side effects.
I would be interested to know where you found the information that made you choose this rather than the chemo as I'm not overly helpful for it extending my life too long. The paper that I signed said 'control disease and prolongue life'. It didn't seem too positive a line to take.
PS I hate to tell you the picture is showing as upside down and its no use asking me how to rectify it as I haven't even tried to put one up. Perhaps I should do that. Maybe at the weekend.
Hi Jeanne, I was late diagnosed and for me all they said was that chemo would maybe extend my life by a year. They would try a variety of concoctions to see what or if they worked. As I am not good with drugs of any kind, I didn't think that it was a very good bargain. Initially I opted for a shorter time with better quality of life. Then I started to do some research-on internet & various publications that I know of. From what I could understand Cancer loves sugar & hates oxygen, so I reckoned if I could flood with one & deprive of the other then it could only help. Non of the things that I'm trying are 'approved' in that they haven't been subjected to the testing & criteria that seems so important, but I was prepared to take the risk as they would certainly not do me any harm. Apart from some tiredness, this has been the case. I don't know as yet whether it has been successful. The only thing I can say is that in 5 to six months since diagnosis, I don't feel any worse and I think perhaps a bit better. You can use these alternatives alongside chemo, it is supposed to minimise the effects of chemo & work synergistically for a better outcome. Although you can't do at same time as chemo. Cancer Active is a very good site for information, they seem unbiased. If you want to e mail me laurakeidan@aol.com I can give you further info. Realistically chemo is probably most effective, but not for me.
Good Luck with your treatment I hope that you will be one of the lucky ones.
I know that picture is upside down-it shouldn't have been, I also don't know how to correct-so I'll just have to be odd. Will be okay in Australia?
Thanks for the reply,sorry I have no idea how to download pictures.I can manage to send posts and e-mails but that is my limit.I am going on a couple of basic courses this year so hopefully I will learn something new.Best wishes
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