Just when we thought everything was settled and organised for surgery next week everything has changed again!! I really don't like this ride but I can't get off!!
I went for CT scans at our local hospital last Wednesday as the final step before having part of my right lung removed next Tuesday with a few extra bits of 'patching up' We got home to find an answerphone message asking us to contact the lung cancer unit (at a different hospital) The upshot was the following the deeper biopsies that had done the previous week they had found cancer cells in my windpipe and surgery was no longer an option. We were devastated. Fortunately an appointment had been organised with an oncologist for the following day. Thank goodness for our local Hospice who looked after us with support and immense kindness during that afternoon. I didn't know you could cry so much but now I know you can and you don't actually fall apart!!
The oncologist was a good guy who explained clearly what the problems were and why surgery was no longer an option and why it appeared to take so long to get a proper diagnosis of this wretched cancer. It seems the cancer is in a very awkward place and despite many tests it kept throwing up false negatives and the specialists were suspicious - clearly they were right !!
They are still looking at a curative treatment - chemoradiation - 33 days of raditherapy and cisplatin and etoposiide for three days during weeks one and five of the radiotherapy. It doesn't sound a bundle of fun and starts in three weeks. Has anyone had this treatment - it would be useful to know what to expect?
Cheers to everyone. Hope your week has been better than mine!