Hello Everyone
As of March 13 2017 all my tumors in the left lung, three sections in my liver in my lymph nodes and one spot in my spine are gone. I just had my 6 month Brain MRI and it was clear again. I am now on a three month CT scanning my first one is June of 2017. I was in a double blind first line treatment for immunotherapy drug. I got a bag and half then I had a severe allergic reaction and was remove and unmask from the trial. I had 4 rounds of Carboplatin and Etoposide beginning Dec 27 2016 and ending on March 2 2017. I was given a dismal outcome and even though I know my type of lung cancer responds well to chemo my oncologist and researchers are amazed at how fast and quick my tumors started to disappear. By February of 2017 most has resolved which I had written about here.
I honestly believe we as humans are all different. And everyone responds differently to chemo and targeted drug therapy along with immunotherapy . I believe the little bit of the immunotherapy drug I received made all the difference and reprogram the cancer cells. I maybe wrong, or it is just a plain miracle.
There are over 2000 and a few in this trial. I spoke to one woman who had the same reaction as I did. Her researchers kept her in the trial and premediated her the third time and slowed the intake of the infusion. She is having remarkable reduction in her tumors.
The drug I believe made all the difference was Tecentriq (Ayezolizumab).
Now I am also a realist and know I have a vicious disease, and this could come back. My Doctor has agreed to do a full genomic testing panel and see if I have any of the markers that maybe we could target with another immune therapy drug. He has agreed to do a liquid biopsy as well. The death rate and side effects or preventive either one out weighs it for me at this time. If it does come back we will look at targeted radiation and Gamma Knife for the brain.
I just wanted to share my good news. I wanted to give folks hope. I am still scared and still know my odds of beating this is not good, but I refuse to let it kill me. I said that from day one.
So I will update you on after June 19th. My first three month CT scan will be June 15th and I meet with the oncologist on the 19th. I still need your support and prayers as all of you need mine.
Kym
Stage 4 SCLC
Treatment Failures
