Liver Biospy completed on 11-09-2016 CT/PET Scan Results are in.

[Kym105]

Hello everyone, I completed the liver biospy on 11-09-2016. They took three samples from my liver. I feel like someone placed a poker in my gut. I read the PT/CAT scan results. To say I am confused is beyond words. The report pointed to primary lung cancer or potentially lymphoma. I also saw that some bone marrow in my hips maybe involved. Many years ago I had a test that started my bone marrow was predisposed for this very thing.

I also received my fathers medical reports. He has non-small cell lung cancer stage II in his left lung same place as mine. His had not spread like mine according to his lung report. He had a part of his left lung removed. He passed away a year after that but not from the lung cancer. I also found out his sister who would be my Aunt also had lung cancer. These folks are biological paternal relatives that I just found via DNA in March of this year.

So I wait for the biospy report and the appointment with the doctors on Dec 19th. I have to tell you I am scared to death. But I will keep fighting and hope the biospy will finally give us some kind of direction so I can start treatment and reduce the spread of this, cancer....

[RwHayes Community Superhero]

Hi kym105,

This waiting period is hard, it's almost drove me crazy. From everyone I talked to I think it's probably very hard for everybody. I was told I have small cell and that it spread very fast and then have been waiting for 3 weeks. But I finally start treatment in the morning and I'm glad they have a very detailed treatment plan so I guess it worked out as well as possible, and I'm sure yours will too just hang in there and treat your immune system while you wait. At least that's the advise everyone has been giving me.

Best of luck,

RW

[Denzie Moderator Volunteer in reply to RwHayes]

RW, you rock! Its deeply appreciated that you share your experience on this, the night before you start your chemo. I hope that you continue to share your thoughts and insights. By doing that you give others the courage to come forward and say, ME TOO!

[Kym105 in reply to RwHayes]

RWHayes, I am so happy for you to start treatment. I am still waiting, been four weeks since they found the tumors, appointment the 19th, hope they will start me on treatment before Christmas. Please let me know how you are? Are you having chemo or something combined with it , by itself or something else?

[scifiknitter Blogger]

Kym, waiting for the biopsy results is definitely a kind of torture. I remember waiting for three weeks to find out whether I would make it into a clinical trial, those weeks got very long at the end.

Your doctor will be very, very interested in your family history.

[Kym105 in reply to scifiknitter]

Yes the waiting is horrible, everyday I wait I feel these cancer armies are multiplying and growing inside of me. The pain from the liver biospy was horrible, felt like someone kicked me in the gut with a hot poker. I do not do well on Fentyl and Versa not sure that is the correct spelling, so that made me sick to my stomach. But I have to keep going, and not give up. Yesterday was a bad day, I just broke down it was hard. This journey is not one I expected to be on ever, but I am here like everyone else, and I have to be strong....

[Kym105 in reply to scifiknitter]

Please read my new post I have been diagnosed with extensive stage small cell lung cancer. They are telling me there is no targted drugs for this only chemo. This comes from Dana Farber. Now I have to look for something local to start chemo, They want me on this next week. I feel like I have to start all over again. Very Scared.

[FtB_Peggy]

Kym, please don't put the extra burden on yourself to be strong. You are what you are in that moment, and you are doing the best you can. Sometimes breaking down is the best we can muster. Make sure you keep telling your medical team that the pain is not being controlled, and that you experienced nausea, they need to know in order to help out.

Meanwhile, I am sorry you have to wait - must seem like forever...unfortunately it just all takes time. And that is maddening.

[DebThomas]

Hang in there!! I know how scary everything is!! Know that you are in our thoughts & prayers!!