Beginning Rituxin 4 weekly infusions on Friday. Very frustrated.

[jasondemarzo]

Diagnosed in May. Started on Dex pulses tha went up to 120k then down below 10k twice. Shifted to Prednisone which kept platelets slightly above 10k. This was through June. IVIG shot me to 230k and back down to 17k within the second week of July. I began 75 mg Promacta in July and late August it was 57k. 2 weeks later 29k. 2 weeks later 33k. This past Friday was 7k.

Hemo said that he wants me off of Promacta on Thursday. For this week only..I am on 75mg promacta and 60mg of prednisone until Friday morning. We are beginning 4 weeks of Rituxin every Friday through October. Hemo does not feel that NPlate would work because it is virtually the same as Promacta..just in an injectible form. I hate ITP.

[SoporRose]

Hating ITP is a reasonable response. But I've have good luck with Rituxan. My platelets have hovered around 100k for over four years. My doctor says no one gets more than five years, but at least I've had this stretch. I hope it works as well for you. I do know that others on this list haven't gotten the same results, but I'll hope that you do.

Good luck, and let us know how you're doing.

Ruth

[Rikk68 in reply to SoporRose]

Hi I have had itp since 1994at the moment it’s five down from 12 just take vitamins nothing else

[SoporRose in reply to Rikk68]

I hope your numbers rise!