Experiences with

Nplate

Does anyone have experience with taking romiplostim (nplate)? Can taking it disqualify you from clinical trials in the future?

Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month. From everything I have read, I cannot find a rhyme or a reason or any sure way of treating or predicting this disease.

Maybe this Nplate injection I've been hearing about? Was hoping there'd be something that would fix this altogether since I got ITP so quickly and it was virus-induced. Thanks in advance for any responses.

His HGB is 8.1 We are doing the papaya leaves - trying to rebuild All the other platelets stimulants I have read about on here, the Dr says does not qualify for him, the NPLATE and Doplet. we have asked about preisdone she was looking into his blood numbers to see if she would start this.

Really trying to avoid getting there , I have read about stimulaates like nplate and doptelet, are these something I can ask Dr about - still willing to fight this battle for my dad .any any advice or recommendations would be greatly appreciated Thank u

Hello everyone, I have started nplate and I am losing hair and thinning hair so much does it stop and hair regrow after nplate treatment ends . Thanks Male 18 years old

It is my hope that my hematologist has finally found the right dosage of NPlate and when I am down to 5 mg of Prednisone my numbers won’t tank like they have done with every other medication combo I have taken.

I have Nplate treatment every week so I’m tested regularly for covid. Wednesday 25th Aug I had a covid test, didn’t have any notification of a problem. I had my treatment on the Friday(27th) Saturday (28) I started having symptoms of a cold, sneezing. Sunday I felt like I was getting a bad cold.

Hi all, was going to start rituximab but hemo wants to try Nplate first. Has anyone had a good / bad experience with this? Thanks

Switched to Nplate and did fine for a year on one vial that I could inject every 10 days instead of 7 days but after a trip to turkey without any disease and a count of 120k two weeks prior, had a stomach bleeding again which now switched to the second vial.

If so did it stop after a while or continue whilst taking nPlate? I have shoulder length hair and it’s getting to the point I need to consider a short hairstyle. Any help would be great, thanks in advance. Ali

Hello everyone, I am on nPlate, I am on weekly doses and been on it for 7 weeks. I am getting periods of extreme fatigue, similar to before I was diagnosed. I am not due to have another blood test to check my platelet levels for another three weeks. Does anyone else get fatigue on nPlate?

Nplate could be an option. We would have to drive 2 hrs every week for the Dr to give the injection. Or is a splenectomy our best option at this point?

blood work was checked every week, besides the prednisone in basic treatment 4 rounds of rituximab was given(by the way if 1 round doesn't work don't let them prescribe more) platlet count only when up when given NPlate . she maintained a super healthy diet. Nothing made the platelets go up.

My wife is diagnosed with ITP 2 years ago,she is on nplate and has her ups and down with increasing and decreasing the dose to stay round 100, she never had any bleading even when the platelets were 3000.

Starting in late Dec 2019 I would start NPLATE injections to Boost my #'s and each time taking blood counts only to slowly rise and fall. 9 visits later I only got to 8K. Am I interoperable ?

I'm currently in week 3 of taking Nplate. It could boost my platelet count to 32 however I have nosebleed sometimes recently. I was wondering if it's a side effect of NPlate or something serious?

And also they want to start the Nplate for me today . I've asked doctors if it's a good idea to be on both medications (Nplate and Rituximab) at the same time. They said there is no issue but their answer couldn't convince me.

In 2013 and part of 2014 I was on NPlate and then Promacta for ITP which really didn’t do very much for my problem. I got very sick with CLL and entered a clinical trial in June 2014 with Zydelig/idealisib and ofatumumab.

I am currently self injecting Nplate weekly with platelets fluctuating within wide limits, but I feel ok apart from fatigue. Before itp hit me like a ton of bricks, I had a dental implant. Now it looks like I shall lose the tooth next to it.