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Nplate
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Romiplostim
Does anyone have experience with taking romiplostim (
nplate
)? Can taking it disqualify you from clinical trials in the future?
Does anyone have experience with taking romiplostim (
nplate
)? Can taking it disqualify you from clinical trials in the future?
Hidden
in
Advanced Prostate Cancer
1 year ago
Looking for more wholistic answers to dealing with ITP
Last week they put me on a short dose of dexamethasone which helped and now I am getting
Nplate
injections weekly for a month. From everything I have read, I cannot find a rhyme or a reason or any sure way of treating or predicting this disease.
Last week they put me on a short dose of dexamethasone which helped and now I am getting
Nplate
injections weekly for a month. From everything I have read, I cannot find a rhyme or a reason or any sure way of treating or predicting this disease.
bonandmick
in
ITP Support Association
2 years ago
Covid-Induced ITP Recovery Questions
Maybe this
Nplate
injection I've been hearing about? Was hoping there'd be something that would fix this altogether since I got ITP so quickly and it was virus-induced. Thanks in advance for any responses.
Maybe this
Nplate
injection I've been hearing about? Was hoping there'd be something that would fix this altogether since I got ITP so quickly and it was virus-induced. Thanks in advance for any responses.
thestrugglebus
in
ITP Support Association
2 years ago
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LOW PLATELETS 27,000
His HGB is 8.1 We are doing the papaya leaves - trying to rebuild All the other platelets stimulants I have read about on here, the Dr says does not qualify for him, the
NPLATE
and Doplet. we have asked about preisdone she was looking into his blood numbers to see if she would start this.
His HGB is 8.1 We are doing the papaya leaves - trying to rebuild All the other platelets stimulants I have read about on here, the Dr says does not qualify for him, the
NPLATE
and Doplet. we have asked about preisdone she was looking into his blood numbers to see if she would start this.
danyelpolo
in
Advanced Prostate Cancer
2 years ago
Xofigo paused
Really trying to avoid getting there , I have read about stimulaates like
nplate
and doptelet, are these something I can ask Dr about - still willing to fight this battle for my dad .any any advice or recommendations would be greatly appreciated Thank u
Really trying to avoid getting there , I have read about stimulaates like
nplate
and doptelet, are these something I can ask Dr about - still willing to fight this battle for my dad .any any advice or recommendations would be greatly appreciated Thank u
danyelpolo
in
Advanced Prostate Cancer
2 years ago
Nplate hair loos
Hello everyone, I have started
nplate
and I am losing hair and thinning hair so much does it stop and hair regrow after
nplate
treatment ends . Thanks Male 18 years old
Hello everyone, I have started
nplate
and I am losing hair and thinning hair so much does it stop and hair regrow after
nplate
treatment ends . Thanks Male 18 years old
Steven_77
in
ITP Support Association
3 years ago
Long term prednisone use
It is my hope that my hematologist has finally found the right dosage of
NPlate
and when I am down to 5 mg of Prednisone my numbers won’t tank like they have done with every other medication combo I have taken.
It is my hope that my hematologist has finally found the right dosage of
NPlate
and when I am down to 5 mg of Prednisone my numbers won’t tank like they have done with every other medication combo I have taken.
hiltonhead
in
ITP Support Association
3 years ago
Covid positive, fooled by cold symptoms (just forwarding information)
I have
Nplate
treatment every week so I’m tested regularly for covid. Wednesday 25th Aug I had a covid test, didn’t have any notification of a problem. I had my treatment on the Friday(27th) Saturday (28) I started having symptoms of a cold, sneezing. Sunday I felt like I was getting a bad cold.
I have
Nplate
treatment every week so I’m tested regularly for covid. Wednesday 25th Aug I had a covid test, didn’t have any notification of a problem. I had my treatment on the Friday(27th) Saturday (28) I started having symptoms of a cold, sneezing. Sunday I felt like I was getting a bad cold.
swheels
in
ITP Support Association
3 years ago
Nplate experiences please
Hi all, was going to start rituximab but hemo wants to try
Nplate
first. Has anyone had a good / bad experience with this? Thanks
Hi all, was going to start rituximab but hemo wants to try
Nplate
first. Has anyone had a good / bad experience with this? Thanks
Loftyc
in
ITP Support Association
3 years ago
How to get rid of this itp thing
Switched to
Nplate
and did fine for a year on one vial that I could inject every 10 days instead of 7 days but after a trip to turkey without any disease and a count of 120k two weeks prior, had a stomach bleeding again which now switched to the second vial.
Switched to
Nplate
and did fine for a year on one vial that I could inject every 10 days instead of 7 days but after a trip to turkey without any disease and a count of 120k two weeks prior, had a stomach bleeding again which now switched to the second vial.
s00rena
in
ITP Support Association
3 years ago
NPlate and hair thinning
If so did it stop after a while or continue whilst taking
nPlate
? I have shoulder length hair and it’s getting to the point I need to consider a short hairstyle. Any help would be great, thanks in advance. Ali
If so did it stop after a while or continue whilst taking
nPlate
? I have shoulder length hair and it’s getting to the point I need to consider a short hairstyle. Any help would be great, thanks in advance. Ali
DevonMaid1
in
ITP Support Association
3 years ago
Fatigue
Hello everyone, I am on
nPlate
, I am on weekly doses and been on it for 7 weeks. I am getting periods of extreme fatigue, similar to before I was diagnosed. I am not due to have another blood test to check my platelet levels for another three weeks. Does anyone else get fatigue on
nPlate
?
Hello everyone, I am on
nPlate
, I am on weekly doses and been on it for 7 weeks. I am getting periods of extreme fatigue, similar to before I was diagnosed. I am not due to have another blood test to check my platelet levels for another three weeks. Does anyone else get fatigue on
nPlate
?
DevonMaid1
in
ITP Support Association
4 years ago
Splenectomy or other options?
Nplate
could be an option. We would have to drive 2 hrs every week for the Dr to give the injection. Or is a splenectomy our best option at this point?
Nplate
could be an option. We would have to drive 2 hrs every week for the Dr to give the injection. Or is a splenectomy our best option at this point?
RJanna
in
ITP Support Association
4 years ago
Spleen removal
blood work was checked every week, besides the prednisone in basic treatment 4 rounds of rituximab was given(by the way if 1 round doesn't work don't let them prescribe more) platlet count only when up when given
NPlate
. she maintained a super healthy diet. Nothing made the platelets go up.
blood work was checked every week, besides the prednisone in basic treatment 4 rounds of rituximab was given(by the way if 1 round doesn't work don't let them prescribe more) platlet count only when up when given
NPlate
. she maintained a super healthy diet. Nothing made the platelets go up.
Espomom
in
ITP Support Association
4 years ago
Herpes infection within the body,couses platelets to go down even on nplate?
My wife is diagnosed with ITP 2 years ago,she is on
nplate
and has her ups and down with increasing and decreasing the dose to stay round 100, she never had any bleading even when the platelets were 3000.
My wife is diagnosed with ITP 2 years ago,she is on
nplate
and has her ups and down with increasing and decreasing the dose to stay round 100, she never had any bleading even when the platelets were 3000.
Jon1
in
ITP Support Association
4 years ago
Open Heart Surgery W/ ITP
Starting in late Dec 2019 I would start
NPLATE
injections to Boost my #'s and each time taking blood counts only to slowly rise and fall. 9 visits later I only got to 8K. Am I interoperable ?
Starting in late Dec 2019 I would start
NPLATE
injections to Boost my #'s and each time taking blood counts only to slowly rise and fall. 9 visits later I only got to 8K. Am I interoperable ?
Dahle2424
in
ITP Support Association
4 years ago
Does taking Nplate causes nose bleed ?
I'm currently in week 3 of taking
Nplate
. It could boost my platelet count to 32 however I have nosebleed sometimes recently. I was wondering if it's a side effect of
NPlate
or something serious?
I'm currently in week 3 of taking
Nplate
. It could boost my platelet count to 32 however I have nosebleed sometimes recently. I was wondering if it's a side effect of
NPlate
or something serious?
farasad2001
in
ITP Support Association
5 years ago
Take both Nplate and Rituximab at the same time
And also they want to start the
Nplate
for me today . I've asked doctors if it's a good idea to be on both medications (
Nplate
and Rituximab) at the same time. They said there is no issue but their answer couldn't convince me.
And also they want to start the
Nplate
for me today . I've asked doctors if it's a good idea to be on both medications (
Nplate
and Rituximab) at the same time. They said there is no issue but their answer couldn't convince me.
farasad2001
in
ITP Support Association
5 years ago
Ibrutinib and odd side effects
In 2013 and part of 2014 I was on
NPlate
and then Promacta for ITP which really didn’t do very much for my problem. I got very sick with CLL and entered a clinical trial in June 2014 with Zydelig/idealisib and ofatumumab.
In 2013 and part of 2014 I was on
NPlate
and then Promacta for ITP which really didn’t do very much for my problem. I got very sick with CLL and entered a clinical trial in June 2014 with Zydelig/idealisib and ofatumumab.
KevinCLLITP
in
CLL Support
5 years ago
Dental implant?
I am currently self injecting
Nplate
weekly with platelets fluctuating within wide limits, but I feel ok apart from fatigue. Before itp hit me like a ton of bricks, I had a dental implant. Now it looks like I shall lose the tooth next to it.
I am currently self injecting
Nplate
weekly with platelets fluctuating within wide limits, but I feel ok apart from fatigue. Before itp hit me like a ton of bricks, I had a dental implant. Now it looks like I shall lose the tooth next to it.
Heath21
in
ITP Support Association
5 years ago
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