Hi everyone, I got diagnosed with ITP in August 2014, never even new what a platelet was before I was admitted into hospital with a count of 4. I was started on 60mg of steriods but it was apparent very quickly that they were not working so was slowly weaned off them thankfully as they made me feel so ill. So they then gave me a round of IVIG which worked for 6 weeks and then levels plummeted again, So back in for another round of IVIG, again this worked for temporarily but due to liver damage caused by the Omeprozol I was taking when I was in the steroids they could not try me on any new medication till my liver had recovered so had another round of IVIG. My liver is now functioning normally and I have just had another round if IVIG and they have also started me on MMF, has anyone got any advice on this drug, side effects, how effective it is and success rates? I have been on it 3 days now and apart from feeling nauseous that is the only side effect so far. They have said the next step if it does not work would be Rituxen, but am just going to wait and see how I go on MMF and hope that it keeps my levels stable.....I have been gluten free since September and whereas I am feeling a lot better for it I am not sure it is having much effect on my plaletlets levels yet but maybe this can take time!
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