well i dont know where to start this is very long story anyways i just need to know if this could be hughes syndrome and finding it hard to understand why my specialist hav took so long to realise it. how it started off i have lupus n when i was trying for bby i had many of miscarriages n after the third one i wanted to know why i kept having miscarriages n had many of tests this time last year n lupus specialist did normal tests wiv blood tests coz after i had lose a bby i was flaring up alot but all tests came back negative but when i say doctors in woman health she did lots of blood tests too n she did them twice n she came back n told me this time last year tht the blood test came back positive for lupus causing the miscarriages n she told me wat was happening tht i was having clots tht caused me to lose the bby tht i will need fragmin injections n asprin but she never sed wat it was called could this be hughes syndrome? or it just lupus n never understood wat she sed but she sed sumthing about its called sticky blood but again is this hughes syndrome or just lupus? anyway after tht i got pregnant n they put me on injections n asprin but tht dr has never mention it to my lupus specialist n forgot about it til later in pregnancy i flare up lots n my bby is now 5 months nearly i hav bin reli bad flare up n i hav neulogical problems tht i cant walk n keep blacking out n hav stomach problems n bad joints n at end of pregnancy my rods in my back hav moved n caused me lots of pain rods r there coz i had scoliosis n i am anaemic n i hav b12 deficietly n my periods r messed up n i hav lots of bad headaches tht set me off into flare up i am on steriods n chlordroxychquine n morphine n vit d n iron tablets n my lupus specialist is sending me over to another specialist but lupus specialist didnt know anything about then other test tht lady doctor did last year has i hav spoken to him n tried to explain but he send she never sent information to him about them test n blood test i had done wiv him always come back negative but he sed it does more than likely look like u hav hughe syndrome and he has sent me for more blood tests but could i still have hughes syndrome? and what would people do about them tests in past do you think i should try to get more answers about them tests in past ?
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