Suffering with pains in your joints.

[Stannington-lad]

Hi

When I went to St Thomas’ back in may to the patient forum, the doctor said that those who suffer from Sticky Blood (Lupus Anticoagulant) and APS that you can suffer with pains in your joints.

I have pain in my joints especially in my fingers and toes, how can I go to the GP and tell them this with out them thinking of arthritis.

Thank you

Regards

Terry

[camerel]

Unfortunately I have found that sometimes I have to educate the doctors. What has helped me on occasion is to get medical articles noting the relationship between the blood disorder and the joint pain and having the doctor read it. Sometimes the doctors are too busy these days to think outside the box or do research on their. Good luck....I know how hard it is to get them to understand what we live with everyday.

[Stannington-lad]

Dear Camerel

Thank you for your comment. It is along battle as doctors things that it is just to do with DVT's only.

[Hidden]

Hi there, I have recently been experiencing really bad joint pain especially in my feet. i mentioned this to the consultant last week and was told its APS !! I have APS and always had muscle pain and aches but just lately I am so stiff my joints feel like wood and the pain in my feet and heels cause discomfort and sometimes i cannot bear the pain and I dread walking. I am very persistent and if i have to suffer the pain I will nothing is going to stop me !! It drags me down bigtime and reduces me to tears .But i would like some pain relief somehow but unfortunately the consultant did not offer anything for the pain. I forgot to ask because my memory is getting worse and i did not have long at my NHS appointment. I am going to the GP on Tuesday to ask but unfortunately he is not aware of APS so I can only ask. I feel like I have aged 20 years !!!! Its just not fair is it ?

[Stannington-lad]

Hi Julie-Anne

Hope all goes well on Tuesday for you.

[jessielou]

Hi stannington lad,

Lots of us with aps do have joint pains and various other symptoms, some of us have other conditions too. Such as fibromyalgia, lupus, sjorgens.

Take a look at suzypawz blog symptoms Olympics! Also Hughes syndrome foundation website is brilliant source of info, if you not already that is.

I suffer with joint pains too.

Take care gentle hugs sheena xxxxx jessielou xxxxx

[YvonneW]

I have suffered with joint pains and extreme fatigue, both of which are apparently 'lupus-like' symptoms in people with APS. I was started on Plaquenil (hydroxychloroquine, an anti-malarial) a year ago and my joint pains have almost disappeared and on the whole I'm less tired.

Look this up on the internet and take evidence based articles to your GP and/or get yourself referred to someone who understands APS. It is a nightmare trying to educate medical people but show them information from the Hughes Syndrome Foundation website. I was once blue-lighted in an ambulance to hospital with the paramedics asking me ' So what is this Hughes thing then?!' A bit scary. Good luck.

[Stannington-lad]

Going to the GP today to see what he says!!!

[jessielou]

Hi Terry

how did you get on with Gp, Plaquenil could be the answer. I`m due to start on it in next two weeks will let you know how I get on!!

Hope all ok today

Take care gentle hugs Sheena xxxx