Sticky Blood-Hughes Syndrome Support
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London support group meeting Wednesday 30th October 2013

Ann Sumra runs the London support group and has restarted it after a short break. This time it will be on a more formal basis and will be supported by Richard Glaves, Clinical Nurse Specialist Thrombosis/Thromophilia at Guy's and St Thomas' Hospital who will be providing an education component.

The agenda will discuss:

What we want to get out of the support group

Educational component

Our experiences of Hughes

It is taking place for one hour from 5.30pm-6.30pm at the Haemophilia Centre, First Floor, North Wing, St Thomas' Hospital.

Ann has already been in touch with the members of the original London support group but, if you have not yet been invited and would like to attend, please contact her on: ann.sumra@btinternet.com.

6 Replies
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Wish I cud go...lack of funds at mo' are going to stop me doing a lot of things :( hop you have a good meeting & I'll catch up with you all again soon xx

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Thank you, will none StT patients be allowed to go?

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Yes indeed! We have lots of people who come from all over the country, as they find London more central. The more the merrier! Look forward to meeting new people. We all need each other.

Blessings Ann

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I'm sorry I cannot get to this meeting as I'm working too far away that day. I hope you have a productive meeting

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Unfortunately I won't be able to come as I can't get into London as unable to use public transport at the moment, I hope the meeting goes well.

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Have a fantastic group meeting. Would be lovely to go but unfortunately I have appointments for my son on that day.

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