I found this website....: flarewatch... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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I found this website....

5 Replies

flarewatch.com

It appears to be a website to log in and track flare symptoms so that you can generate a report and bring to your doctor and also maybe figure out triggers, etc....

Its in its beta form and free and it states that everyone who signs up now that it is in beta will be able to use it for free for the life of the website.

I am going to tinker with it a bit and see if I like it, thought others may find it helpful to them. I figured it can't hurt, but knowing me I will get bored with it pretty quick even though it seems simple enough...

-Kristina

5 Replies
MaryF profile image
MaryFAdministrator

Hi Kristina... I shall have a good look at this, Mary F x

I talked to the admin of site and he may add APS and ways to track INR and coumadin dosage! He apparently built it after 2 kids got dx with JRA and then realized it may help others too..... Its a work in progress.

I will play with it and maybe others too and we can offer feedback on how it can help us? I know many keep notebooks spreadsheets, etc....

MaryF profile image
MaryFAdministrator in reply to

Yes, if you are happy to do this, please keep us posted. And thanks x Mary F x

DorothyItaly profile image
DorothyItaly

Isn't this cool???? What a great idea! I will definitely give this a go and report back. Dx

TreyBon64 profile image
TreyBon64

I'd love to see how this works out for aps and the meds and symptoms ... would be great to have everything at hand to see the correlation to everything.

It's a brilliant idea ... would love to give this a go ...

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