I was just diagnosed with APS after experiencing a cerebral venous thrombosis occurrence the beginning of April. I have been - in my mind at least! - very healthy. I ran my first marathon two years ago, trained for another one up until about a year ago, worked out most recently doing crossfit and would always mix in the gym with all of the above.
They attributed my onset of CVT to a sinus infection - I get them all the time living in Pittsburgh and being allergic to mold, ear infection, dehydration, oral contraceptive and APS.
I think the diagnosis has been a blessing because thus far, I feel better than before the CVT occurred. I believe my push that allergies always made me tired and groggy could have only been partially true.
Given my APS levels are very high and I had CVT, they are recommending I stay on blood thinners for the rest of my life.
Some of my questions:
Does warfarin have any side effects?
Is there a safe, side effect free substitute to warfarin?
What is the likelihood of DVT recurring when on medication? If it does reoccur, is it typically in the same location?