If a lot of us sent an email to the BBC web site they might do something on Hughes as it works In an opposite way they then do an article on Hughes I will later no harm in trying. Karen xx
Yes I have sent this in an email to my MP....that my next step after the local paper is it needs to go in the big papers & TV.......I'm hoping I get listened to
If we all bug them all enough ......WE WILL GET LISTENED TO!!!!!!
Had to go to the Rhumatologist today, had an appointment .He says Hughes syndrome and Rheumatoid arthritus are two different conditions, Well i think we all know that, but I just thought that it was interesting that pregnancy affects Hughes syndrome as does Rhumatoid arhritus but oposite (sorry spelling) perhaps it will give him something to think about.
Just waiting for a burst of energy so i can ask for some posters and leaflets for Hair dressers etc
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