Sad news - this woman clearly had autoimmune disease beyond her reaction to the contraceptive pill.

[MaryF]

telegraph.co.uk/news/uknews...

MaryF

[Lure2]

Hi Mary,

It is so sad that a person has to die before something will change.!

People with Crohns disease have cardiolipin antibodies. I have read that somewhere.

Kerstin

[MaryF Administrator in reply to Lure2]

Yes it is very sad. MaryFx

[Hidden]

Thank you...I cannot believe APS is not mentioned...And that her Rheumatologist did not test her blood very 3 months

or so to see if other Autoimmune Disorders develop....

I am so grateful I never used the "pill"....I tried it when I was 19 yrs old ( I am now 65)...and felt my legs giving out under me...I knew then something was wrong with my "circulation"...so I stopped taking it...I am convinced I would have

suffered a stroke or somesuch event if I had continued

[MaryF Administrator in reply to Hidden]

I went on it briefly and ended up in St Thomas's aged 19 with the severest headache I have ever had, blurred vision and some sort of swelling behind my eyes.. nobody said it was the pill, but I decided it was! MaryF

[GinaD]

I was put on the pill to combat my She's-so-sick-let's-put-her-in-the-hospital monthly periods. Didn't help. And on the pill I didn't feel well for those other 23 days in the month either. I gave this therapy a 3month trial. Then I stopped.

[MaryF Administrator in reply to GinaD]

Thank goodness you did. MaryF

[Lure2 in reply to GinaD]

I guess what you mean with "the pill". The new "pill" "Anovlar mite" was intruduced in Sweden for the first time in 1963. In 1965 I started it and continued without any stop (should have been a stop) untill 1971. I was OK on it.

Kerstin

[phoenix77]

I took the pill for around 3 months when I was 16 (I'm now 37). It led to an unforgettable christmas as I was taken into hospital on Dec 22nd with a massive dvt and told to stay very still for several days. I was let out the day before new year's eve.Sadly it took me another 10 years before I got the aps diagnoses.

[MaryF Administrator in reply to phoenix77]

Yes, awareness still needs to be raised! MaryF

[Suzypawz]

Very sad indeed needed reviewing a long time ago....I was put on it for about 8 years whilst having been diagnosed with Hughes!!!!

[MaryF Administrator in reply to Suzypawz]

Yes... well as a young woman, I said to the doctor who was writing the prescription, there are so many family members who have had blood clots, are you sure???????? I was suspicious of the dizziness and extreme headaches and took myself to St Thomas's even they did not make the connection, but I took myself off it. MaryF