Doctors in Vancouver, BC?: My... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Doctors in Vancouver, BC?

siveinvan profile image
5 Replies

My hematologist has disappeared, and I need someone who 1) believes I have APS (!) and 2) can deal with the increased pain, etc. Anything would be greatly appreciated.

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siveinvan profile image
siveinvan
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MaryF profile image
MaryFAdministrator

Hi there, I am sure somebody will be able to help you with this, and lots of members plus the charity itself may have some information. I shall have a bit of a look myself and see if I can find anything. Mary F

so far this has popped up in my internet search. There is a contact for Quebec at the bottom left: You may get something nearer by contacting them! Hope this is helpful. More responses will come in for you.

apsaction.org/

Skyllark profile image
Skyllark

Hi - my wife has (C)APS - we live in Ontario, Canada... in Southern Ontario there are some good doc's that know about APS... I know of someone in Edmonton that says she has had good luck with doc's there... but be carefull - some are behind on detection knoldge... or old forms of treatment... there are some that are really good - I hope you find someone in BC that can help you

siveinvan profile image
siveinvan in reply toSkyllark

Thanks everyone: I have a list now; but you are so right, Skylark. One of the people listed on the APS website is the person who told me I didn't have it after I was diagnosed with it in 1997. (!) The blood tests are tricky and it's been frustrating since my original hematologist went into...politics!! I would, however be interested in the Edmonton contact as well as my family is there and we visit bi-annually. Thank God for this group...will start trying to get into the Vancouver list...minis the 'world renowned hematologist', Dr. Vickers. Who, incidentally, (after I had 4 miscarriages, then diagnosed and then had a live birth with Heparin and aspirin) and told me it was just a 'fluke' and I didn't have APS. No matter, if it wasn't for this site I might have believed her but migraines, joint pains, etc. are real.

MaryF profile image
MaryFAdministrator in reply tosiveinvan

Well collectively, we will all get there! Good luck and keep us posted. Hope the list was useful xxxx M

siveinvan profile image
siveinvan in reply toMaryF

Thanks so much, Mary. :)

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