I'm new to this blog. Thank you so much to the creators and participants. I've been looking through questions and answers about APS specialtists in the U.S. Is there anything like the Huhes Center in the U.S. Even the premier academic medical centers and the Mayo clinic seem confounded about APS. And in light of Dr. Huhges April 2016 post are shockingly unaware that if you have a genetic history of APS and are showing symptoms perhaps you ought to be on a blood thinner even if you have a negative APL test. i've looked through specific responses to certain questions and am still wondering: Did anyone ever respond about a knowledgable doctor in the kaiser system, preferably California. I've checked the various weblinks offered and those appear to lead to dead ends. Finally, does anyone know what would be required to have a consult from Dr. Hughes. We can get ourselves to the UK. Thank you for any advice. Seems we have a strong family history (Genetic) that may manifest in younger members of the family with symptoms but no positive APL tests and manifest in older members of the family with strokes and even death despite a warfarin and/or heparin regimen.
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