Hi all - I have finally had an agreed referral to St Thomas' by my Neurologist!! I have a feeling He just wants rid of me to be honest - and in his own words he doesnt understand whats going on with me inbetween bouts of migraines, and that neurology is a 'bit of a dumping ground'. So I await the referral. I have been to see rheumotology who know nothing about it, Opthalmology and neuro opthalmology who say that my eyes are fine its neurological nerve damage, My physiotherapist who confirms muscle wastage down to neurological problems, My Neurologist is very good and its down to him i have got as far as i have,but I think i really need to see a specialist for the support, My GP wasnt willing to refer me as he seems to think that once you are anticoagulated that is all that can be done, and i accept this completely, and i am very lucky to have such a fab doctor I have to say, but I feel I should see somebody who understands the implications of this nasty invader of our lives as the pain levels im experiencing just arent right. I had another stroke - like episode last wek and ended up back in the stroke ward but it was put down to migraines - yet the eye pain has been here constantly for 13 months - surely no migraine lasts that long!! But i at least have a diagnosis and medication for migraines which is better for me anyway! My eyes continue to trouble me - but since the aspirin two weeks ago was started alongside the warfarin the black cloud that was in my left eye has not been back! Sorry for such a long one but my last question posted I was very down beat so I thought i would post a good one to make up for it - thanks all xxxx
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