High Iron Levels: I apparently have an... - Hughes Syndrome A...

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High Iron Levels

Molly100 profile image
6 Replies

I apparently have an overload of iron in my system. I have been on iron tablets for years now due to low levels. I had a Total gastrectomy two years ago and have been taking iron tablets daily. Has anyone else had this problem. I cannot understand why this has happened. The doctor has stopped my tablets and I must get tested again in 3 months. Has this got to do with APS ??

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Molly100 profile image
Molly100
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6 Replies
lupus-support1 profile image
lupus-support1Administrator

Hi!

Only your doctor can explain this situation in your specific case. If you are concerned, see your consultant.

Best wishes,

Ros

Molly100 profile image
Molly100 in reply tolupus-support1

Yes I realise that, I was just wondering if anyone else who has APS has experienced this problem, as I had never heard of too much iron in system.

snorkle272 profile image
snorkle272 in reply toMolly100

I know of a few people who have this problem. And have it for different reasons.

One has a hereditary problem due to his Sicilian ancestry. Even with the overload of iron he often appears jaundiced.

Another man I met said it was a hereditary issue within his family for generations. His doctor had him donating blood every three months to relieve his overloaded blood.

Another started experiencing it as a young girl. In her case it had to do with her mixed racial heritage. At the time she was forced to limit her food to those containing less iron. Her body was so overloaded that she was always extremely fatigued. I don’t ultimately what happened when it came to treatment for her.

I hope you find some answers and treatment through your doctor. Good luck with your issues.

Pooky7 profile image
Pooky7

I just recently seen an article about how iron is stored in our organs. I think copper, which we need and lack will release it. We don’t need supplements if we release it. Maybe your stored iron was unlocked? I will have to try to find that info for you Don’t worry. Stay positive 😊❤️

Thick_Blood profile image
Thick_Blood

have the opposite issue. Anticoagulants was causing internal bleeding. So min went as low as 16.

I am now taking iron tablets every other day

Ferritin
user666 profile image
user666

If you are post menopausal iron is not usually recommended. It should only be used if your doctor has tested your iron and prescribed a dose. High iron in post menopausal women is a common occurrence and can lead to heart disease.

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