This was my face yesterday after trying to have a wash post op. My IVC Filter was removed on Tuesday in what turned out to be a very traumatic procedure. My face feels burning hot when this happens, like it's very badly sunburnt but I've not been able to tolerate being in the sun for the last few years, as my face rash will flair up and I will be unwell for days afterwards.
If seen from the side it looks exactly like the shape of a butterfly wing but it doesn't seem to go across my nose like the traditional lupus face rash does.
I would be very grateful to find out if anyone else with either lupus or APS, experiences any thing similar to this face rash?
Thanks so much, Claire