H R T : No is the simple answer to... - Hughes Syndrome A...

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silemoran profile image
8 Replies

No is the simple answer to taking H R T with Warfarin.

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silemoran profile image
silemoran
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8 Replies
Star13 profile image
Star13

Actually it isn’t! There is plenty of evidence now that patches are very safe and Prof Hunt says so. Your view is quite out dated and there is certainly no reason for woman to suffer any more with all the options now available.

silemoran profile image
silemoran in reply toStar13

That's great news wasn't that way in 1989, but science changes everything in life for us humans best of luck with your treatment.

MaryF profile image
MaryFAdministrator

Hiya, do check in with your GP and main Hughes Syndrome/APS consultant, patches are safer, and some are prescribed this as an option but the consultant will need to have a full and working up to date knowledge and will still err on the side of caution. MaryF

silemoran profile image
silemoran in reply toMaryF

Thank you Mary for reply but my medical history is not suitable for patches.

MrsMouseSJ profile image
MrsMouseSJ

Prior to my APS diagnosis and being on warfarin, I had three episodes of pulmonary emboli. Perimenopause proved horrible for me, with overwhelming low mood and anxiety attacks particularly disabling. I was put on antidepressants and Diazepam. But I slowly realised what was happening - I was in perimenopause (which GPs hadn't really taken on board) and it might not actually be those drugs that would really help me. I spent quite a bit of time reading around about HRT and asked a couple or more questions on this forum. It seemed that the safest HRT option for me would be estrogen patches. With the support of my rheumatologist my GP agreed to try me on these at a low dose (75mcg estradiol patches i.e. 25 mcg absorbed per day). And I haven't looked back. The SSRI and Diaz. are long gone. Things aren't as they were pre menopause but they are far better than the alternative. As was the case pre patch I need to keep my INR between 3 and 4. I should also say that a few years back a GP tried me on oral HRT, to try to stem perimenopausal heavy and irregular bleeding. Within 2 days I felt incredibly unwell, including having heavy pains in my legs; I carried on for another 2 days; then felt I might do myself a serious harm if I tried to continue. The GP very understanding of this and agreed with my decision. My experience of the patches couldn't be more different. But obviously any decision to prescribe has to be taken on an individual patient basis.

GillyA profile image
GillyA

Really worth talking to the right expert about your specific situation. I’m currently on low dose oral progesterone to manage menopause and bleeding risks. Both haeme and gyne happy - and more important I’m well (at least in that are)

silemoran profile image
silemoran in reply toGillyA

Glad your well that's great.

Cherry8 profile image
Cherry8

Hi,

Everyone responds differently, so just be cautious. I tried oestrogen patches, which were fine, but had to try three different progesterones, all of which gave me bad chest pain, so I have had to stop them all. Best wishes.

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