Osteoporosis & Fosamax: I’ve had... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Osteoporosis & Fosamax

loretta1106 profile image
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I’ve had osteopenia for years & was recently told at 74 that I have osteoporosis on my left hip.

I have always taken calcium supplements, exercise etc

My Question is has anyone had experience with Fosamax

I’m worried about the side effects. I’m already on warfarin & Plaquenil, have APS & arthritis & have had one stroke.

I’d appreciate any information or advice you can give me. Thank you

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loretta1106
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MaryF profile image
MaryFAdministrator

Hi we are not medically trained on here, you really need to write to your GP and copying in your main Hughes Syndrome/APS consultant, expressing your concerns, they need to weigh up the risks between them, also include any other specialists, it will move the conversation on a bit. ncbi.nlm.nih.gov/pmc/articl... MaryF

Lure2 profile image
Lure2

Hi loretta,

Nice to hear from you but sorry to hear about your left hip. I hope you do not have too much pain.

Wish you a healthy new 2021.

Kerstin

KellyInTexas profile image
KellyInTexasAdministrator

Hi Loretta- no I have not had experience with it. Your hematologist will have to really guide you carefully on this one. I’m sorry I can’t be useful...

Sorry to hear you’re having trouble with loosing bone density.

Stay warm- stay healthy! New York is so beautiful this time of year.

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