Update : Well, after spending six weeks... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Update

judes profile image
10 Replies

Well, after spending six weeks in hosp and a short time in rehab with extra physio I have now been home a week. Went through some very dark days.

Kitties were very pleased to see me, tho Perky was a bit confused, he was last in the line when kitty brains were given out. 😁

During my stay in hosp amongst other things I had a small stroke so having trouble with my right hand but sure it will improve in time. Due in part to an arrogant doc who refused to believe my INR should be as high as it is, fortunately I keep a copy of the letter St Thomas sent to my GP. I don’t get rude I just asked him if his knowledge was as good as the Proff as he was only a doc. It would be fair to say we didn’t get on!

I have known for some time my heart and lungs are not good, Docs didn’t expect me to see last Christmas let alone this one, my second name is stubborn.

Now have 24/7 oxygen which stops my fingers going blue like our dear Kelly’s.

love and hugs to one and all

J

Like most people I’m writing off 2020, which means I can have the same age as my younger brothers

Which I’m sure will not impress them🤣

Love and hugs to one and all

J

Written by
judes profile image
judes
To view profiles and participate in discussions please or .
Read more about...
10 Replies
Wittycjt profile image
Wittycjt

Glad you are home, as i am sure you are. Sad to hear about the stroke. Keep working that hand, the mind believes what you tell it , tell it positive things. Hugs to you and i hope the dark days are all behind you now. Get some rest and adjust to your new oxygen regime. Good night

Ozchick profile image
Ozchick

Welcome home :)

HollyHeski profile image
HollyHeskiAdministrator

Brill news, that's just made my 2020 a little bit better!Your determination and sense of humour is an inspiration to us all, even those kitties.

Keep strong, keep safe and keep improving, sending you a big hug x

Ageingfemale profile image
Ageingfemale

Hiya! I’m so pleased you are back home, it will feel strange for a while, after 6 weeks in hospital, following a certain routine, suddenly you can have a drink and eat in your own time and when you feel like it. It can also be a bit scary. Just take your time and ‘go with the flow’. Take care of you (and kitties too of course)

lupus-support1 profile image
lupus-support1Administrator

Welcome back! Stay safe and be well!

Fra22-57 profile image
Fra22-57

Lovely you are home for Xmas. you have wonderful attitude and humour.2021 is a new year so let’s head for that.Merry Christmas 😃☃️🎄

Kerlampert profile image
Kerlampert

Aloha....well, I can certainly say that your sense of humor was not harmed while you were hospitalized. I hope you get back to "it". Stay strong!

GinaD profile image
GinaD

Goad you're home with the cats. Merry Christmas!

MaryF profile image
MaryFAdministrator

I am delighted you are home, and I am sorry you have had such a horrible and dangerous time, and even now, can still take the over view, a huge hug on the way to you, this minute! Mary F

KellyInTexas profile image
KellyInTexasAdministrator

Welcome home J!

I’m sure your own bed and familiar surroundings must be of great comfort.

The older I get, the more I appreciate my favorite pajamas...

You must have gone through some really dark days. I’m hoping you are through the worse of those now.

2020, don’t let the door hit you on the on your backside on your way out!

Enjoy your kittys, snuggle in your fav pajamas, and have nice cups of hot tea in the dreary weather while you heal.

Thank you for the update, as we all were so concerned.

Slow and steady, and check in when you can.

Not what you're looking for?

You may also like...

Home, not yet

Thank you all for your messages of support I do read them all. I’m not quite home from hosp,...
judes profile image

Fragmin and warfarin

I have calmed down enough to write this post, took me a couple of hours. I’m currently in hosp...
judes profile image

Hospital again

I’m a little fed up keep coming into hosp with the same prob, have pneumonia again, the strain on...
judes profile image

Not home yet

Well what a to do I’ve been having still not home I was in supported housing for intensive physio...
judes profile image

Hosp Pt 2

An update for you all I’m still in hosp, and struggling to get on top of pneumonia, docs are about...
judes profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.