Low white blood count

[Karen56]

My new GP did some blood work on Tues. because I was concerned with renal function. My sodium was low and WBC. She said it was "clinically insignificant" what ever that means. I have no APS Dr. as she was let go by hospital after her Fellowship. I am in the states.

[MaryF Administrator]

Hi there, what shes is saying probably is the score is not bad, however by asking on here, you may find a new Dr in the USA who can help you more effectively with your Hughes Syndrome/APS. MaryF

[Debbweb01]

Good luck in the States! I finally found a Rheumatologist in my area that knows about Hughes! Where in USA do u live! I went to at least 3 b4 finding this wonderful man who also shares an office with an immunologist! I'll c her soon too! I've been feeling unwell since beginning of August and waiting to get stronger so I can try my Plaquinil! You can go on a site called apsfausa.org! That's where I found my new doc! If u find one call ahead first and ask if they know about APS! Even if on the list! Also when u go ask questions that u know the answer to and see that they get it right! I did that with a few docs that said they knew about APS and asked certain questions and they've gotten the answer wrong! It's difficult in USA DUE to our current health care system now! God Help US after election! Hillary is stuck on Obama Care which no one takes and has been proven not to be good or helpful!!! Good Luck and I'm from Long Island, NEW YORK! Godspeed

[Lure2 in reply to Debbweb01]

Woww........ you have found a Rheumatologist in your area that knows about Hughes (APS)!! Congratulations.

Perhaps you will feel better when you start to try Plaquenil. You know so much about APS now so it will not be difficult to talk to them i believe.

Yes we follow the US election here in Sweden with excitement. No one is sufficient of those two I believe. Sweden and the US has always been close especially after Obama who is very popular in Sweden.

Best wishes from me i Stockholm

Kerstin

[Debbweb01 in reply to Lure2]

Wow Kerstin I'm sooooooo surprised Mr. Obama, ( I won't even give him the respect of calling him President) Lol... He is the reason I lost my leg in the first place when he almost brought down our whole country with his Obamacare! He destroyed me and I fell into the cracks because of him! You are correct tho there in No good candidate here for us! Unfortunately Hillary will b our next President and have more Obamacare! I am being thrown out of my excellent Oxford insurance as of Dec 31st! There are not many insurance companies covering the individuals because since OBAMACARE THEYRE NOT making any money on individuals anymore! I'm a wreck now because I heard in the news that New Yorkes as I am are suffering the most! I can't get any answers till November 1 St when open enrollment starts! If I don't get an insurance company I will be fined $600 in taxes by Mr. Obama!!! I am going to 3 and 4 doctors per week now b4 my insurance ends! I have a 5 star plan now and need a new leg again! I'm praying Oxford won't refuse me like in the past cuz they know they're getting rid of me! I need this new leg to walk better and to be me! I had NO IDEA that wen u loose ur leg things get worse with time not better! They NEVER, unfortunately told me this and my stump keeps shrinking and now I'm walking on my Femur bone with pain and new leg cover makes me unbalanced and now I trip and fall! Not good for one who was already running with other prosthetic leg! Sorry so long Kerstin I just needed to tell the truth about what goes on here with these Polititians! They're rich and don't care, only about getting richer and richer, while MIDDLECLASS AMERICA PAYS FOR THE POOR AND welfare and lines their pockets! I'm very happy for you in Sweden and Scandinavian Countries that have wonderful car! I'm just so scared I won't get an insurance company that's equally as good as I have now! Love to you Kerstin! Godspeed!

[Karen56 in reply to Debbweb01]

Amen! She tells the truth.

[Karen56 in reply to Debbweb01]

I live in Colorado. There seems to be no one in the area. There are many patients in need of care here for APS. I think I have looked at the list but I have no memory anymore. Will check it again. Thx

[Debbweb01]

Ok wat area code are you ! I found 4 SPECIALSTS in APS in 303 area code and one in I forget tell u in a moment lol... My memory very bad too even tho I have photographic memory and can't forget things I want to!!! Lol... See it once and it's forever in my brain since I'm 2 years old! So this memory thing pisses me off to no end! I just looked at it and forgot! Lol...

[Karen56 in reply to Debbweb01]

I think it drives my husband more crazy. He has to tell me things over and over. I am in the 303 area code. A little south of Denver. Would love some help.

[Debbweb01 in reply to Karen56]

Ok 2 are in evergreen Co! Please go to apsfa.org. I saw 4 in ur area code ! Go to that site and on left hand side of page go to red rectangular space and c Doctors list click on that and a map will come up! Press CO for colored so! Also one on Iowa Ave in Almont, Co! Good luck and it may be wirth the drive! Also call first to be sure they know about APS! I've found just because u read something don't mean it's true! Bring a friend or family member and any med records u have! Write your questions down and GOOD LUCK AND GODSPEED!!! I hope this helps you!!! Never take this disease lightly! Better to be safe than sorry!

[Debbweb01 in reply to Debbweb01]

Hi again! I love helping people so please let me know how it goes! If u need the names I will most definitely do that too! If for some reason u can't get on web site! Good luck and keep in touch

[Lure2]

Hi Karen,

Do you have primary APS (

[Karen56 in reply to Lure2]

I tested positive for antibodies 3 times. Also Sjogrens and Raynauds. Does that answer your question?

[Lure2]

......it went away again.. I wanted to say: Do you have primary APS (only APS and no other autoimmun illnesses)? Do you have all the three antibodies positive or only one or none and diagnosed by symptoms?

What treatment do you have for anticoagulating your thick blood? Does it work?

Have you read "Sticky Blood Explained" by Kay Thackray. That is a good book for us APS-sufferers. She has APS herself and writes about the symtoms and how it is to live with this illness. Good also for relatives to understand us better.

I think your memory will improve a lot after you are properly anticoagulated.

Good luck with the help of Deb´s APS-Doctor. It is exstremely important to have someone who understands what we are talking about.

Best wishes from Kerstin in Stockholm

[Karen56 in reply to Lure2]

I am on a statin, Plavix and Plaquinil. And Lisinopril for high blood pressure. Just had started them when the Dr. left. I am just finishing the book. Last chapter. I feel like I wrote that chapter!