Hi, not sure if u can see this very well but today it appears that a blood vessel has suddenly burst or something in my wrist for no reason! I have previously had this happen on my middle finger where it really really hurts and bruises for no apparent reason.
I have aps and sle and am on clopidogrel amongst many others!
Just wondered if anyone else ever gets this as when I show people they go ‘oh yeah’ but don’t seem to know what I’m on about!
This is the worst one yet, just happened all of a sudden really hurt to touch then just left big bruise!??
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Sara_A
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YES! I was at a concert (not rock and roll, high school band) and after clapping, the same thing happened to me. I figured these sorts of things would continue to happen because this is a strange disease. BUT, the folks on this site continue to assuage my fears with helpful information and concern.
Hello. I can relate, although I don’t have a diagnosis of APS. I have lupus, sjogrens, reynauds, varicose veins & osteoarthritis in various places. I have been tested twice for APS but negative, despite some symptoms. I’ve had veins burst in my legs twice. I’ve argued with GP about it. You must have hurt yourself they say. No, no injury, 100% sure. I usually get sharp pulling pains in the area for 24/48 hours before the burst vein shows itself. Last time they gave herodoid cream - says for bruising. Not sure they believed me at the GP. I took photos like you have for future reference. The leaflet says it is used for vein inflammation too.
I read that you have Sjögrens, Lupus, Reynolds etc and symptoms of APS also but the bloodtests for APS are negative.
I wonder ....... when did you take the last bloodtest for APS. Some of us have APS even if the bloodtests some times are negative. They can change from time to time.
I also wonder if your GP is the only Doctor you have when you have so many autoimmun illnesses which are often connected to eachother. I suggest you look for a Specialist who also knows about our illness APS as it is possible you have got it also. Some times it runs in the family. What are you symptoms at present? If so you need anticoagulation.
Hi Sara. I get these sudden vessels exploding as well. And yes they are very painful and unsightly I have no idea what or why this happens but hopefully I’ll get an explanation when I see my Dr in August! Poor Dr is going to be bombarded with so many questions I would like explained to me! Maybe someone else on this site will know???
I get those and my 80 year old mother gets them. She has an autoimmune disease and is on prednisone. I have low platelets and high iron, high RBC's. Not sure why we get them? Hers is prednisone related I'm sure. I know they are painful. Can't offer help. Just know you're not alone.
I get them too, always, so far in my fingers. Finger crease on joint hurts, turns black, fades as blood disbursed, goes purple then back to normal but very tender for next couple hours. I have Aps and am on warfarin.
Ah poor you. I get horrid red patches which look like bruises, think it’s the side effect of clopidogrel. Check with GP or consultant that is looking after you
I have shown it to a gp today where I work and he asked if I was on steroids which I am so it must be a side effect of those! But he did say u must have banged it so I guess he’s referring to easy bruising from steroids but I didn’t bang it I was literally just stood still in the kitchen when it just started.
Happens to me also. Veins burst without injury/spontaneously on my palms, at finger joints, and wrist. I have a history of iron deficiency anemia but I am not sure if this is a blood or vascular (vein) problem. Please let me know if you are able to find what it is.
The same thing has happened to me this morning. Really sore.
HiYay. I am not crazy!! I have APS and on warfarin only. I get these ALL the time in my fingers, toes, knees and sometimes other places. Always a sharp pain for a bit, then a hot lump and “boom” a bruise! Every doctor I have asked looks at me weird, then says “a bleed”. I think they just don’t know.
If anyone finds out why, please please post.
The ones in my knees leave a huge mark below and sometimes behind the joint. The ones in my feet feel like I am walking on a marble, then “boom”.
I wonder if you have been diagnosed with positive antibodies (there are 3 of them) or by symptoms?
I also wonder if you now have finally found an APS-Specialist as you do need such a Doctor (who knows APS or autoimmun illnesses like Sjögrens, SLE, Thyroidea etc etc)?
Good Luck and a Happy New Year of 2021 from Sweden
I am new to this forum and am just reading your post. Have you gotten any answers about this issue? I have also had this happen to me several times a year over the past decade and have had doctors dismiss my inquiries.
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