ISO of an APS specialist in BC

[ShoriL]

I was diagnosed 11 years ago with APS, and have had four DVT's since initial diagnosis. Just stopped warfarin treatment and have begun Dalteparin due to a new DVT while on warfarin. The past year has been horrible as I have had five venous ulcers in one leg due to CVI. I am looking for a specialist who has some solid research about APS and willing to try new procedures (safely) which may assist with vein health and circulation to lessen the impact of CVI in my legs.

There was a symposium/conference in Istanbul (Sep 2016), and I'm curious if there has been any new information, studies about APS from that event? I've seen a Vascular Surgeon and two Hematologists who haven't heard anything new about APS. I'm hopeful for someone out there who can shed light on this frustrating and sometimes terrifying disease.

[Lure2]

Shoril,

Sorry to hear you have had such a bad year! Hope the three Doctors have heard of HS/APS even if they have not heard anything new about our illness.

Hope you find someone who can help you! Hope you stay on our site as our members know a lot about this illness and knowledge is power! You will learn a lot I am sure.

Best wishes from Kerstin in Stockholm

[HollyHeski Administrator]

Hi and welcome.

I agree with my colleagues advice.

Where are you based so we can hopefully help you find a local specialist?

Hope your health improves soon xx