I was diagnosed 11 years ago with APS, and have had four DVT's since initial diagnosis. Just stopped warfarin treatment and have begun Dalteparin due to a new DVT while on warfarin. The past year has been horrible as I have had five venous ulcers in one leg due to CVI. I am looking for a specialist who has some solid research about APS and willing to try new procedures (safely) which may assist with vein health and circulation to lessen the impact of CVI in my legs.
There was a symposium/conference in Istanbul (Sep 2016), and I'm curious if there has been any new information, studies about APS from that event? I've seen a Vascular Surgeon and two Hematologists who haven't heard anything new about APS. I'm hopeful for someone out there who can shed light on this frustrating and sometimes terrifying disease.