Me again, so what I thought were pani... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,402 members10,612 posts

Me again, so what I thought were panic attacks were TIA's

Herbs77 profile image
6 Replies

After yesterday's call from Dr Robinson; my Haematologist at St T's it transpires I've been suffering recurrent TIA's. I'd assumed they were nasty panic attacks as i feel scared & so disorientated during their short spells. I wasn't bothered yesterday but today am feeling really panicky and frightened. My short term memory is appalling, i don't recall having written emails and texts and tweets just minutes after writing them for example. I don't even know what i meant to achieve writing this post now. Feeling scared.

Written by
Herbs77 profile image
Herbs77
To view profiles and participate in discussions please or .
6 Replies
MaryF profile image
MaryFAdministrator

HI, I am glad you have got to the bottom of things with your consultant, have they discussed what needs to be done? If you need a phone call or appointment have somebody you trust with you to act as another pair of ears. MaryF

Herbs77 profile image
Herbs77 in reply toMaryF

Dr Robinson said I'm to have my neck scanned as a follow up, she said they think the clot could be to do with my endocarditis, and want to confirm if iths clot was before or after my mitral valve surgery, they are deliberating how to proceed with my long term Anticoagulation plan, also they want to get to the bottom of my kidney issues. I'm feeling totally overwhelmed and my s/t memory seems that be getting worse and worse which is really worrying me.

MaryF profile image
MaryFAdministrator in reply toHerbs77

It sounds to me as if you are really having some detailed input which will probably end up with a decent care plan, and make you feel a bit better, do keep us posted. MaryF

GinaD profile image
GinaD

as I've posted here before, I was dismissing my panic attacks as just that – something psychological and not biological. But turns out, MRIs revealed that my panic attacks had actually been mini strokes. interesting to read that someone else had percieved mini strokes as panic attacks!

gina

Kalykrill profile image
Kalykrill

I've had a brain nri before and it came up clear. I get panic attacks all the time out of nowhere and get treated mentally for them. But other things have happened, confusion, I have bad short term memory loss, and I tell my wife all the time that I swear I've had strokes before. I get lightning in my eyes often. I get alot of tension headaches, the start in my neck and move up into my head, like a hand was was there spreading like fingers. Could I get strokes without showing ono an mri?

Lure2 profile image
Lure2 in reply toKalykrill

Yes we can easily get TIAs or mini-strokes and those micro-embolies or clots are not always seen on an MRI.

I have LA like you and it is important to keep an INR steady and rather high. Most of us on Warfarin feel best on an INR around 3.5. Then your symptoms get much much better.

Kerstin in Stockholm

Not what you're looking for?

You may also like...

I am having what seems to me to be a New version of TIA's! Any advise or anyone having the same problems

I have been having a different form of what appears to be TIA's. I am absolutely fine then I get...

Really Worried !

After seeing professor D'Cruz yesterday I am left feeling really scared. He said my APS levels are...
jessie68 profile image

What I do that keeps me going.

One of the things I took on when I got Hughes as I can't work now , as 'I'm un-reliable'! is I have...
Suzypawz profile image

Feeling frustrated

I'm 22 and APS is consuming my life. When I was first diagnosed I really tried to just go on with...
Dcaraveo profile image

New to Warfarin

Good morning! It has been a while. I was informed yesterday that my antibodies had become worse and...
Ylmom profile image

Moderation team

See all
KellyInTexas profile image
KellyInTexasAdministrator
HollyHeski profile image
HollyHeskiAdministrator
lupus-support1 profile image
lupus-support1Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.