So as some of you may recall, I had a visit back to St Thomas's just before Christmas after being discharged years ago asking them for help with my digestive woes and various other complaints. I was told I was in the wrong department and that I could not be helped with APS there. Many of you responded. I was going to complain re the wasted day in London but as I was so worried about my being taken off warfarin I kept quiet. Today I received a copy of a letter that went to my GP from the said Dr stating that in his own opinion I should not be on Warfarin and he has referred me to a haematologist at St Thomas's. I was put on warfarin by Prof Hughes himself. I cannot function off of it.
The letter explains why he has come to the conclusion he has, correctly stating that I do not test positive to anything. He notes I complain of various digestive problems and gives quite an argument to back himself up mostly regarding blood tests with negative results. He feels the clot I had for no reason could be for a number of other reasons. He does not mention I have a gallbladder polyp and he has failed to mention there is a very strong family history of clotting and auto immune all of which I told him. Luckily I took a witness. I am furious at the moment and will be raising this with my GP and Rheumatologist. I don't know what will happen next but I will not be going back there ever again. My husband thinks this is what they want ! You were all so supportive before and I wanted to let you know what is happening there.
Be aware not to go there if you have APS diagnosis only. This Dr does not agree with Prof Hughes and never has.