Timelines

[ehc918]

Just wondering what everyone else's experiences have been with treatment and symptoms response.

Mostly I'm interesting in cognitive symptoms (dizziness, brain fog, memory) and crushing fatigue.

On aspirin almost 1 month and Nattokinase 1 week.

Initially I felt better but relapsed after about a week.

Thanks in advance and much love to all of you!

[Manofmendip]

Hi.

Who diagnosed/manages your APS and where are you from? This information will help us to help you better.

Best wishes.

Dave

[Lure2]

Where are you from and who is treating you APS? I saw that APsnotFab asked you that earlier.

Some of us have thought that you need something "stronger" than baby-Aspirin. I have personally not heard of Natokinase. Anyway Warfarin and Plaquenil and Fragmin are more wellknown drugs to treat APS. As you know we are not doctors here so you have to talk to a Specialist.

I think you have told us that you have had no "events" Good if you have not. The symptoms are very important and an APS-doctor understands what you describe. Many on here are sero-negative that means they test negative on the Cardiolipin, Beta2Glycoprotein1 and Lupus Anticoagulant. But they have the symptoms and an APS-doctor understands the symptoms. That is why he is so important. Other doctors do not!

Good luck from Kerstin

[ehc918]

I am from Southern California and I have a naturopathic dr that is managing me. These are medical doctors who think outside the box and are more open to outside the box diagnosis.

My dr isn't against using the heavier pharmaceutical agents, however prefers to use herbs and supplements whenever possible.

I am just interested in people's personal experiences of recovery and how long to give treatment a chance before determining if something is working or not.

Thanks you.

Elke

[Lure2 in reply to ehc918]

Hi Elke,

We have answered you and suggested several things. You have got a diagnose of APS but go to a naturopatic dr that is managing you.

I really hope he knows what APS is. This is too thick blood that can be very sticky sometimes and by own experience I know you feel better when it is well and right anticoagulated. It is your Life and it is also your decision!

Best wishes from Kerstin in Stockholm