Sharp stabbing pain on left side of my head. Tender scalp. Pain last seconds. I feel it off and on for about 10 minutes

[Jenny10]

I have sharp stabbing pain on the left side of my head.. Scalp is tender to touch where the pain is is located. lasting anywhere from 2 to 8 secondsoff and on.. It may last up to 10 minutes altogether

[emmaj]

I have random stabbing sharp pains that shoot in my head-enough to make me whince and shout out, my scalp is always sore to the touch in some place or another - not sure what it is though x

[Lure2 in reply to emmaj]

Hi emmaj,

Are you stable on warfarin? I had those sharp pain in my head before warfarin. Now gone but I am selftesting and can control that I am in range every second day.

I do hope it will be better soon!

Kerstin

[emmaj in reply to Lure2]

Im not at all stable really since my kidney problems, last time it was checked it was 4,but i have face pain terrible today so i assume its back down x

[Lure2 in reply to emmaj]

So very sorry emmaj! It is quite natural. Life is very difficult for you at present . Could you do something about the INR?

Best wishes from Kerstin

[Lure2]

Hi, Do you have APS (Hughes syndrome)? Were are you from? If you have got APS I think you shall talk to your APS-doctor about it because it can be microclots.

Best wishes from Kerstin in Stockholm

[Jenny10 in reply to Lure2]

no I was not diagnosed with Hughes syndrome.I had a stroke last june.I read a MRI of one doctors notesthat they were not going to rule out possible brain tumor.I've been having dizziness off and on dizzy spells ever since my stroke.the top of my head is tender when it starts to feel like stabbing pain. The pain last only second but it's severe. lately I get nauseated very easily. I feel of fullness in my head.

[MaryF Administrator]

Hi, can you tell me where you were diagnosed with Hughes Syndrome/APS? I need to ascertain this fact before trying to help you. MaryF

[Jenny10 in reply to MaryF]

I have not been diagnosed with Hughes.I had a stroke last summer at least that's what they think I had and they're treating me for a stroke with plavix cholesterol medication blood pressure medication. I have had dizzy spells ever since off and on I actually lost my job because I couldn't drive to work

[MaryF Administrator in reply to Jenny10]

Ok, you need to ask your GP/ consultant to run the tests here are the blood tests, and also familiarize yourself with the charity website information, hughes-syndrome.org/about-h...

Then this will help your consultant/GP and yourself decide if you have the condition: hughes-syndrome.org/about-h...

MaryF

[Manofmendip]

As my colleague, Mary has asked you, do you have a diagnosis of APS/Hughes Syndrome. Dave

[Jenny10]

No I have not been doing with Hughes. .I had a stroke last june. I read 1 of the doctors comments in my chart on the mri that they weren't sure it could be a brain tumor also

[Lure2]

Hi jenny 10,

Where are you from? It is very good that you have now contact with this friendly site. So welcome!

We do not know if you have got APS (Hughes syndrome) but it can perhaps be that illness and then you can get much better when diagnosed and you have met at doctor that knows about APS. So few doctors do. I am sure someone else will answer. I have APS as we all have here and I am from Sweden.

Best wishes from Kerstin

[Jenny10]

I live in Kansas City

[Lure2]

Hi Jenny10, Did you found out about this site by yourself? Have you read about Hughes syndrome? Do you know if they have tested you for APS-antibodies? Would you like to have a name of a doctor that knows APS and ask more about it?

Look at apsaction.org doctors from other countries.

There is a very good book available for sale on Hughes Syndrome Foundation Charity website.

The name is "Sticky Blood Explained" by Kay Thackray.

The symptoms you describe can happen when you have APS but also if you have had a stroke or something else. As we are no doctors here only know our illness, it is difficult to give you a good advice .

Best wishes from Kerstin in Stockholm

[Lure2 in reply to Lure2]

I see that MaryF has answered at the same time also. Good. She knows very well what to do. Follow her good advice.

Kerstin

[mozelle]

Hi Jenny

I have APS and Factor V Leiden. Was just diagnosed 6 months ago. Now that I know what I have, I am putting together symptoms and illnesses that have happened to me all throughout my life and I can attribute many of them to APS. The stabbing pain you describe I had just about 20 years ago--it was on right side of my head about every 10 seconds and also the tenderness on the scalp. No pain medicine helped it. My internist sent me to a neurologist who, after exam sent me for an MRI of my head. He ruled it as migraine headaches and prescribed some medication for me. The episode lasted about 6 weeks, then left. I have had migraines for a good part of my life. As I am doing reading about APS, I find that it can cause migraines. Have you seen a neurologist?

[sumitrawat90]

hiii all.. for past 1 week i have been experiencing pain on the back of my scalp which becomes unbearable whenever i touch it. It all started from top of my scar on the right side of my back of the skull, which was caused due to a strong blow i experienced 10 yrs ago. Luckily my wound was only superficial and doctors did'nt even suggest MRI or CT scan at the time. But due to recent pain on my scalp which started on that 6cm long scar, i took my MRI and CT scan and showed it to 3 nuerologists,which they confirmed as normal brain structure. The next day i could feel very minute lump on 1/4th of the scar(where there is no hair follicle left) and also at the back of the head. The lumps are tangible and appear to be reddish and small. I consulted a neurologist and a dermatologist at the same day. The first neurologist said that the pain is because of the stitches which i had 10yrs ago, but that doesn't explain my other small lumps which are present at the back of the head without the scar. The derm straight away called it a case of neurology and refused to comment on the symptoms.

Other neurologist suggested that it could be a case of nerve sensitivity and had nothing to do with the scar and is stress afflicted. I tried his prescribed meds for 3 days but could find any relief.

Today i went to another neurologist and he said that as the pain is related to scalp and not the headache, it is a case of skin disorder and not the nerve sensitivity. He too examined the lumps closely and asked to refer to the dermatologist, as it appeared some bacterial infection.

I have had dandruff in the past which had gone after i switched my shampoo.

I have tried different opinions from different doctors and everyone gave me a different answer.

Although the pain is 4 on of scale of 10, the thought of not being able to diagnose my condition, is very disturbing.

Can some one please shed light on my case.

[Lure2]

Hi there,

Why do you think this has to do with APS (Hughes Syndrome)? This is a Forum for people with this rare autoimmun illness.

I believe you should have other symptoms like dizziness, tinnitus, forgetfullness, difficulty to walk in a staight line, headache, Vertigo , doublevision etc etc ........ together with this stabbing pain. It has also a cause some years ago by a strong blow.

Put an own question if you are convinced it has to do with APS because now you have landed on a one year old question. Hope you will feel better soon!!

Best wishes to you from Kerstin in Stockholm