Another new problem!! Now have bad pain in my left hip. Its got worse over the last few weeks but put it down to putting on weight.

I didn't think it was ApS related until I read some old posts on here. Does anyone else have the same pain and what do U do to relieve it?

[Manofmendip]

Hi

I had a clot in my right hip once, even though I was on Warfarin with an INR of 4.0, and it was only discovered by seeing its effect on an MRI scan: fluid in the joint; fluid in the bone marrow; and transient osteoporosis/necrosis.

It took about three months to totally resolve.

I hope this helps.

Dave

[Hidden in reply to Manofmendip]

Yes it does thank U. I will go and see my gp just to be on the safe side.

[Manofmendip in reply to Hidden]

I had to go and see one of Prof Hughes' colleagues to get him to ask my GP to order an MRI, as nothing showed up on an x-ray.

[Hidden in reply to Manofmendip]

My gp has referred me to see a doc from the Hughes list but that was in august so she is getting on to them. Meanwhile I am saving hard to try and go private

[Manofmendip in reply to Hidden]

It might well be worth paying to have an MRI privately, which in this area costs around £400.

[MaryF Administrator]

Hi, it is true that extra weight puts pressure on our joints so better to keep it in check, but any new pain needs investigation, and many members have had problems with their hips. Let us know how it goes. MaryF

[Hidden in reply to MaryF]

Thanks I am trying to lose weight but slowly as my inr is up and down alot but im finding it hard to exercise. I seem to develop new stuff all the time but I dont want to put everything down to ApS. I will see gp.

[MaryF Administrator in reply to Hidden]

and as you know I go on like a cracked record about 'Thyroid' mine turned out to be slow and had made me put on weight for a while, best of luck. This is why I put on various articles on here regarding how unreliable the TSH test is for this. MaryF

[GinaD]

I had hip pain which, for years as it steadily worsened despite exercise and weight loss. I noted that the hip pain lessened whenever my INR was over 3. So, I suspected a clot in the bone. I did have MRIs, a lot of X Rays and my doctors all agreed this was "ordinary" osteoarthritis. No one gave my INR observations any credence.

I am no doctor, so I have no idea if an MRIs can definitively rule out blood clots in the bone.

Osteoarthritis does not run in my family --excepting my great-grandmother. And my weight has never been, for my height, "over" normal. Which may explain my stubborn belief for years (continuing?) that the degeneration was ultimately caused by recurring bloot clots.

Eventually the damage - whatever the cause - was severe enough to require a full hip replacement which I had last year.

My hip has been happily ever after since then. I still suffer from problems with the opposite knee, which is. a consequence of an untreated fractured knee at age 8.

Or is the knee osteoarthritis just proof that all those doctors were right and, despite the lack of a family history, I'mjust someone who is prone to osteoarthritis?

So . . . Was my pain APS related? Or just " ordinary" Osteoarthritis? Or a combination of both?

I have no idea. Doctors believe the former. I am tempted to attribute lots of my maladies -- big and small - to APS. Problem is, I know that having APS does not exempt me from the usual issues of aging -- like osteoarthritis. But since blood clots through the body can bring on lots and lots of varied symptoms . . . it does get confusing. Which is why, as mentioned time and time again on this site, it is vitally important to be under the care of a doctor who has experience treating APS.

Good luck with your investigation.

[kathyD64]

As this condition overlaps with other auto immune it could be a pain that self resolves - I had bilateral hip pain for 3 months very stiff movements but I kept walking & at the time was told I had fibromyalgia (now disputed) so didn't mention the pain at the time! But months later & the need for steroids for temple pain ? GCA all my pains disappeared! Now they say I have lupus symptoms - hope you feel better soon but definitely mention it to a medical profession! Kath x

[Hidden]

Good news hip pain is nothing serious just a pinched nerve in my back. Just need to be abit careful and exercise more. Thanks for all the advice xx