A thoughtful petition: Hi, Many people... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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A thoughtful petition

MaryF profile image
MaryFAdministrator
11 Replies

Hi, Many people with Hughes Syndrome/APS end up with some sort of Thyroid problem. There is a narrow choice of treatment around, which does not work or everybody. A lot of us have allergies and can tolerate the more natural approach more than the synthetic. Please sign and pass this petition on if you are in the UK, Thyroid UK do a great job of supporting patients and have started a call to action on this subject: epetitions.direct.gov.uk/pe...

MaryF

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MaryF profile image
MaryF
Administrator
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11 Replies
InSpain profile image
InSpain

Signed xxx

MaryF profile image
MaryFAdministrator in reply to InSpain

Thank you. MaryF

Lure2 profile image
Lure2

Hi Mary, I can not sign but I would like to ask you if you think that my Hyperparatyreodosis (I was operated in 2006) could have something to do with my APS? I have not found any connection myself. Thank you Mary

Kerstin

MaryF profile image
MaryFAdministrator in reply to Lure2

Hi there: ncbi.nlm.nih.gov/pubmed/964... MaryF

MaryF profile image
MaryFAdministrator

Hello, well Professor Hughes often himself alongside others write of the trio of disease, Hughes/APS, Thyroid and Sjogrens and many people do seem to have these problems, in other words another autoimmune problem coming along when you already have one diagnosis of another. MaryFx

DannyBoy1 profile image
DannyBoy1

Mary:

Why do APS sufferers develop thyroid problems?

MaryF profile image
MaryFAdministrator in reply to DannyBoy1

Well, if you have one autoimmune disease it is not unusual to have another come along, a Thyroid problem was the final piece of the jigsaw for me with my five things! MaryF

MaryF profile image
MaryFAdministrator in reply to DannyBoy1

Ps: For your information: the-rheumatologist.org/deta...

MaryF

Lure2 profile image
Lure2 in reply to MaryF

Thank you MaryF for that good publication! .

Kerstin

MaryF profile image
MaryFAdministrator in reply to Lure2

It is always ok to ask me to find anything you wish to read! MaryFx

Lure2 profile image
Lure2

I tried that "article" but I could not get in without beeing allowed or pay so i could not read it but there was a connection in one case at least. Thank you Mary!

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