VOTE NOW - E-Petition to UK government for greater recognition of Hughes Syndrome! Expires 22/05/2013 and 100,000 votes needed.

[Minicrinkle]

Posting this in case anyone wants to vote.

epetitions.direct.gov.uk/pe...

I have only just been diagnosed and dont know anything about disability law generally, but suspect sufferers of APS with severe symptoms could be protected under UK law since from a quick Google it seems that the law focusses on the effect of a disorder on people and their ability to live their lives.

Still, it cant hurt to vote in this petition to make sure sufferers are getting the support they need! Please pass on to anyone you think would be interested.

[emmaj]

signed and forwarded x

[Zezes-nan]

signed

[ebulfin]

My claims for Incapacity Benefit and Disability Living Allowance were both denied and I had to go to an Independent Medical Examination (IME) where I was given a cursory movement test and asked a few questions the doctor knew nothing about APS, refused to look at the information I had put together for the claim and failed to write down exactly what I had answered by only putting what he felt he had heard.

A copy of my critique of his report can be seen at: ebulfin.myby.co.uk/apls.tk/...

A tribunal was arranged and I had said I would attend, even though it would probably seriously effect my overall condition and added that I had now been diagnosed with SLE. The Tribunal immediately passed my claims as “Lupus has been mentioned”. As we all know here APS can be as bad, or even worse, than many cases of Lupus and has a similar mortality rate, so why is Lupus on their list and APS is not?

Please sign this E-Petition and make our voices be heard.

Regards

Eddie

apls.tk

“Well, I’m stumped! We’ll have to wait for the autopsy”

[Kentish_Man]

Signed and forwarded

[Maybells]

Signed and forwarded also

[justlymostly]

signed and forwarded, good luck!

[jom277]

Have signed too

[leyton]

signed fingers crossed !!!