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Hughes Syndrome APS Forum

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Hi there,A tiny amount of help with these petitions please.

MaryF profile image
MaryFAdministrator
8 Replies

Hello

So many people appear to have thyroid problems mixed in with their autoimmune problems. Please take that small amount of time to sign these. Your signature on them will help, especially if you pass the petitions on to friends and family via email or facebook. Thanks.

The first one, anybody can sign, the second one, is a UK based on. Many thanks. Mary F x

change.org/en-GB/petitions/...

epetitions.direct.gov.uk/pe...

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MaryF profile image
MaryF
Administrator
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8 Replies
Jane-Martin profile image
Jane-Martin

Hi Mary, signed the first one and shared it on Facebook. Love Jane xxx

MaryF profile image
MaryFAdministrator in reply to Jane-Martin

Thank you very much x

DorothyItaly profile image
DorothyItaly

Hi Mary, I have been meaning to ask you about this as you seem in a similar situation to me. My metabolism is slow, my body temperature is one degree below normal and I have tremendous problems with my weight. I also show symptoms of thyroid problems including thinning eyebrows and problems with pins and needles/carple tunnel syndrome not to mention aches and pains, neck problems, voice problems etc. BUT my test results are always negative. Prof Hughes put me on Liothyronine for a year to see if it helped but whilst I got effects from it the blood tests did not budge and I came off it as it was giving me palpitations. How did you get the thyroid problem diagnosed and how do you treat it???? I am seeing Prof Hughes later in September and it is on our list to discuss. Dx

MaryF profile image
MaryFAdministrator in reply to DorothyItaly

I see a private nutritionist: Mary F x

TreyBon64 profile image
TreyBon64

Signed both xx

MaryF profile image
MaryFAdministrator in reply to TreyBon64

thank you superstar... if you get a mo - do please pass them on. Thanks x

TreyBon64 profile image
TreyBon64

Already shared on facebook and got one signature already ... I'l have to keep sharing it every now and again xx

MaryF profile image
MaryFAdministrator in reply to TreyBon64

Thanks x

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