INR 2.3 Can you get a DVT?: Can you get... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,414 members10,623 posts

INR 2.3 Can you get a DVT?

Molly100 profile image
15 Replies

Can you get a DVT if your INR is 2.3. I have APS and my range should be 3.5 -4.

Woke up this morning with a niggle at top of my calf. I self tested and my INr is 2.3.

Rang my doctor all appointments have gone even though I stressed the urgency.

They advised me to ring 111. (UK) Done this and they were very helpful and I am waiting for a clinician to ring me back. But that I would check with everyone on here first.

Many thanks

Written by
Molly100 profile image
Molly100
To view profiles and participate in discussions please or .
15 Replies
lucky1 profile image
lucky1

I had a DVT with an INR at 3.2, therapeutic range now 3.5-4.0

Molly100 profile image
Molly100 in reply tolucky1

Thanks I'm at hospital now .

MaryF profile image
MaryFAdministrator in reply toMolly100

I hope you are ok, let us know how it goes? MaryF

Molly100 profile image
Molly100

At the hospital they took a Venus blood test and my INR was actually 1.8! Anyway they gave me clexane injection and 10mg Warfarin. I go back tomorrow for a scan even though my blood test I did not have a DVT. Glad they checking because years ago when I was having recurrent DVT's I never had the obvious symptoms.

Ray46 profile image
Ray46

Short answer is "it depends" - on you. Real question is can YOU get a DVT at 2.3.

For me, 2.3 is in range and theoretically not a problem, I could still get a DVT but it would not be a particularly high risk (I clot arterially anyway). For YOU 2.3 is way below your range, which means your risk would be far far higher than mine (there will be a reason your range is higher). Hopefully it isn't one, but you've done the right thing.

Molly100 profile image
Molly100 in reply toRay46

Thanks Ray

Gimleygirl profile image
Gimleygirl

Hi Molly hope you are okay, what is your normal medication if any? If you are on warfarin there is less than a 2% chance of clotting (caveat this with being taken correctly/no missed dosages/other illness etc) but didn't stop me panicking! Got sent to DVT clinic as had pain in my leg and vein inflamed. Turns out I also have edema (fluid in leg) as well as APS! And the NHS guidance is water tablets or drink more coffee as it is a natural duretic!

Molly100 profile image
Molly100 in reply toGimleygirl

Oh gosh that sounds awful. I am on warfarin for 30 odd years due to APS. So it was a complete surprise to see that I have had another one. I am just glad that the hospital were so on the ball.

Molly100 profile image
Molly100

Hi everyone just to let you all know I do have a DVT!! Even though blood test said I didn't yesterday they had me back for a scan today. Thank god they did!! I cant praise Eastbourne DGH enough. They have been great. Just waiting to see Dr.

Stella profile image
Stella

Glad you are being sorted out by Eastbourne hospital. It's good to know as I live near Battle. I note that you self tested yesterday when used first suspected a clot. Are you not able to self medicate as well? I am under St Thomas's with a range of 3.5 to 4. If I go below 3 I inject myself with Clexane. Perhaps you could discuss this route with your doctors.

Molly100 profile image
Molly100 in reply toStella

Hi Stella. I'm not sure my brain could cope with that. I get awful brain fog . I feel happier leaving it to professional s. My partner gives me the clexane at home if needed . I'm just glad I did test and didn't leave it.

Karen37pear profile image
Karen37pear

I have aps they said my range is 2-3 x hope you are ok

sailorbaejon profile image
sailorbaejon

Hi Molly100, I’d agree with Ray, it’s all very personal to you. My understanding is that your range is assigned based on your risk, and being in range doesn’t guarantee zero event, but should lower the risk to the point that events are either unnoticeable or of minimal consequence.

Sharing experiences - because it’s good that we do - my INR range is 2.0-3.0, but I’ve still had a couple of repeat TIAs, however, they’re just that and very minor in comparison to a stroke. Message from my consultant is that this is life for me now, but that as long as I keep taking the pills and closely monitor my INR, and keep within my range then events should never escalate to the dangerous level.

So, and going back to Ray’s post, it’s great that you are checking your INR and getting the venous test done if any doubt exists at all - this is the best action you can take. The meters are known to read a bit high for APS (certainly the CoaguChek), so if in doubt then get checked fully, and make sure to communicate your concerns / niggles / symptoms to the doctor or clinic. I’m also working with them to try and keep my INR in the top half of the range, as the risk of a low reading is worse than the risk of a high one.

It can also be possible to get a bit of brain fog or memory issue when you’re INR is low, and obvs you have your own identifiers like your calf niggle. If so always then try and be aware of this, don’t ignore it, use it as a reason to do a test and check.

Above all, and I know it’s easy to say, but try hard not to worry too much, maybe just enough to make yourself test and check, and to then take the necessary action.

And if you’re lucky enough to have a great consultant, and get to see them occasionally, write all these uncertainties, questions, doubts and fears down, and then don’t leave the appointment until you’re happy with the responses!

Take care, be well,

Cheers

SBJ

Molly100 profile image
Molly100 in reply tosailorbaejon

Thank you for your reply. I have not had a DVT for 30 years and so it def came as a shock. I dread to think what would have happened if I had left it until Monday when I am due to send my test in to the Nurse who deals with it. Thank you all for your comments I am so glad we have each other on here to answer our problems.

KellyInTexas profile image
KellyInTexasAdministrator

Hello Molly

I hope you are continuing to improve.

On a side note, after reading all the lovely responses from all of our friends here, I would only add that it’s important to figure out if you are going to be a reliable,”finger sticker.”

Some of really aren’t, and that’s a shame.

You might be one who needs a blood draw once a week perhaps from your local clinic for a few months to make sure you are in your therapeutic range. ( you might even test each blood draw against your home coagu check for comparison.)

Not what you're looking for?

You may also like...

A blip with my inr!

Tested myself last Wednesday (there was a reason but no idea what it was!) and it was 4.7 (range...
panda60 profile image

major dvt with inr of 3.8

had another dvt in leg with a inr of 3.8 also all my blood tests in range they dont understand why...
roymelt profile image

2 questions in 1 A) Is the erratic nature of my INR due to APS or azathioprine? B) Is anyone else taking huge doses of warfarin eg. 20mg/day

Is the erratic INR due to APS or azathioprine? Despite eating, drinking and on the same meds every...
WendyWoo50 profile image

A new recommended INR?

After my husband was diagnosed with APS, I found the old APS/HUGHES website, read about recommended...
sbncmo profile image

How are you affected by a high INR?

I had my INR check today and thought it would be low, around 3.4ish as I felt very tired. I didn't...
DelH profile image

Moderation team

See all
MaryF profile image
MaryFAdministrator
HollyHeski profile image
HollyHeskiAdministrator
KellyInTexas profile image
KellyInTexasAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.