Info of the Care Data scheme. Importa... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Info of the Care Data scheme. Important as our medical information will be passed on. It was made law in April 2013 You can opt out.

bernieembleton profile image
3 Replies

Go to medconfidential.org you can print off the opt out form. Also take a look at NHS England sets out the next steps of public awareness about care.data. Hope this is helpful to people.

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bernieembleton profile image
bernieembleton
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bluebutterfly101 profile image
bluebutterfly101

That is such an informative paper and I didn't even know about this. Thank you. At least it gives us an opportunity to have a say in who sees what. However, it should never have been allowed in the first place ~ it is not their right to do this and whoever wants to see these records should have to ask permission of us not us doing the work to protect our privacy.

bernieembleton profile image
bernieembleton in reply to bluebutterfly101

Glad you have found it helpful.

bernieembleton profile image
bernieembleton

You are welcome.

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