A reminder regarding Patient's Day - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,378 members10,571 posts

A reminder regarding Patient's Day

MaryF profile image
MaryFAdministrator
16 Replies

For those of you attending, (and we are now sold out), and, we have changed our location due to outgrowing the original location. We will be holding these regularly if you missed out this time around:

MaryF

Written by
MaryF profile image
MaryF
Administrator
To view profiles and participate in discussions please or .
16 Replies
KellyInTexas profile image
KellyInTexasAdministrator

Fantastic news all ‘ round!

MaryF profile image
MaryFAdministrator in reply to KellyInTexas

Thanks xx MaryF

More information, please. . . .?

MaryF profile image
MaryFAdministrator in reply to

This event is fully booked, however I will be sure to advertise the next, swiftly and on here. MaryF

purple profile image
purple

It is good to know that so many patients are interested. I hope that there can be consideration for a future similar event that is held in the North of England, maybe Manchester or Leeds? Thanks Mary.

MaryF profile image
MaryFAdministrator in reply to purple

I will let you know, mainly they are in London, but I will always give good notice for anything which is on an actually affordable! MaryF

rankin1st profile image
rankin1st

Hi Mary is this the conference that was in Manchester as I just signed and paid really confused

MaryF profile image
MaryFAdministrator in reply to rankin1st

Hi, no, this one is in London. There is another event going on in Manchester. MaryF

purple profile image
purple in reply to rankin1st

Hello, I am going to the International conference in Manchester on Friday 20th for the patients day. Hope to meet you there?

rankin1st profile image
rankin1st in reply to purple

Hi purple yes that will be nice as Am going on my own as hubby not well enough to go.

purple profile image
purple in reply to rankin1st

I will be on my own too. I use a black rollator or sometimes a pink seat trolley thing because of orthostatic tremor! So should be easy to spot! See you Friday hopefully.

rankin1st profile image
rankin1st in reply to purple

Will try and connect:)

rankin1st profile image
rankin1st in reply to rankin1st

Sorry I didn't get to see you hope you enjoyed the conference:)

rankin1st profile image
rankin1st

oh ok hope i chose the right one?! this is all new and a bit confusing, thanks for the clarification.

MaryF profile image
MaryFAdministrator in reply to rankin1st

A different outfit, but some of the same people lecturing, so fine, as long as the information gets out there, it does not matter who is doing it. MaryF

Preston would be good, too.

It helps people coming from Cumbria and further afield i.e. Scotland!

Not what you're looking for?

You may also like...

Azathioprine dose

First a little background: I have been on 200mg of Azathioprine, for a number of years. All that...

Might be diagnosed with Antiphospholipid Syndrome (APS)

Hi I previously in January 2023 was diagnosed with PE, the past year has been difficult and long...

A new discovery for potential treatment!

Light at the end of the blood thinner treatment tunnel? Just read this today:...

Heart Attack at 38

Hi, I first posted on the thyroid board but was sent here to check with the knowledgeable people...

leg weakness

Does anyone have leg weakness? Not like completely giving way but making it feel dodgy to stand up...