More vitamin D in APS articles... - Hughes Syndrome A...

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More vitamin D in APS articles...

Andy_A profile image
9 Replies

Heres a few more snippets about the effect of vit D deficiency on people with APS, the first one makes for easy reading...

annesigmon.com/aps-antiphos...

And this is slightly indepth, pity my short term memory is playing games on me today, I've had a dozen goes at trying to make sense of the first couple of paragraphs and keep losing my drift within the first two lines, so I'll attempt it again when I'm feeling less foggy...

bloodjournal.hematologylibr...

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Andy_A
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9 Replies
taffydaffy profile image
taffydaffy

People with M.S also have Vit D Deficiancy makes you think doesn't it x

77tiger05 profile image
77tiger05

I take 10,000 units of Vitamin D every day and actually has made me feel much better. Try it!!!!

aubretia profile image
aubretia

How do you know how much Vit D to take? I was diagnosed last year with low levels (24) but wasn't sure how much to take and for how long.

SueLovett profile image
SueLovett

There has been a lot of discussion on the news this week about Vit. D Deficiency. It would appear that it is a problem in the wider population as well.

May be good subject for Patient's Conference.

Yes, vitamin D has been shown to be low in almost all the population today and affects many conditions including cancer, MS etc. The health journalist I've been dealing with on the forthcoming Hughes article, Judy Hobson, said she was currently writing several pieces about vitamin D as it's one of the biggest topics at the moment, not just in autoimmune diseases.

We just don't get the chance to get out in the fresh air any more - too much working going on!

Had my Vit D checked a year ago in off season and it was fine. I don't get a lot of sun and had just bought some multivitamins with probiotic and some Vit D to take as well. Thanks for reminding me to put into my daily pill allotment!

Storky profile image
Storky

My result done in December was 55 despite being on supplements. My GP has therefore decided to give me an injection that lasts for 6 months apparently to give me a boost. I am having it on Monday at the surgery as its 2ml and she suggests it goes in the rear end...ouch!!

I also have thyroid antibodies and for anyone who is Hypothyroid it is very important also that your Vit D is adequate. This is because when you take T4 - Levothyroxin - it has to be converted to the useful T3 before you can benefit. If you are deficient in Vit D this will stop or interfere with this process.

Vit D is now seen by many as actually being a hormone.

carolgrinddal profile image
carolgrinddal

few weeks ago had a blood test to see if my vit d was 29 and was told had to take supplement have been taking them but have found they give me problems with my stomache but reading that you can have injections will now ask my doctor,not that they know a lot about hughes here in denmark were i live

purple profile image
purple in reply to carolgrinddal

you might like to look at my question (in the Questions section of the site), about stomach problems and vitamin d. It was posted on 6th February and there are some helpful replies. I am interested that you had the same problem as me. What dose were you taking?

Take care

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