I posted here a couple months back when I first learned I had this. Everyone was so warm and welcoming and so understanding. It's a breath of fresh air and THANK YOU! : )
I think i'm still going through all the emotions, some days very sad and cry, other days scared of the future-- but basically I can't get out of the mindset of total anxiety and fear of "what's going to happen from day to day". I over worry about every little feeling in my body and i may be (am) doing more harm than good. Has anyone else felt this way and what did you do to get away from the negative thoughts and fear, and focus on the positive? Help please!? I feel like I've aged 10 years in a matter of months!!
I am only on aspirin now, which I felt a difference with immediately when I began a couple months ago-- but lately I have been feeling little differences (i.e. small headaches are back (not like migraines before though), fuzzy thinking, lack of coordination, pulse-like feeling in legs, inconsistent leg pain.....) . For awhile the aspirin was great, but could it be losing its effectiveness? Or am I just over thinking all of this?
I need to live life fully, and right now all I can do is think about what disease I have and worry. I don't like being this way. Not sulking for myself, just down in general.
I am so glad this group is here to help each other. What a wonderful thing! Thanks again for any suggestions you may have.