Today has been emotionally draining
I've realised now that as survivors of BI, as family, it can be so hard.
To include
To encourage but not lecture
To be patient and not lose it
To remember that there is more than just them.
I'm struggling tonight because it has been a good day for them and our children. This means a sad and emotionally complicated day for us.
Just wanted to put that out there because it's what is sometimes felt but not said.
Hiya Ored, are U the carer or person who has had the brain / head injury ???
& I was thinking, always nice to hear a bit about people, so if U fancied writing a bit in your profile t let us kno a bit about yourself, that would be great Xxx
Hi...I'm the carer. I have been meaning to add some stuff on my profile but then get distracted or called away.
Sounds like someone who's had a head injury. I get distracted all the time, especially on the Internet. Every intention of doing one thing & then a butterfly goes past ;o)
Ok, maybe not that extreme, but not too far off
🙃🙃🙃
Hah, yes...let's call it sympathy not behaviour or something. I've been trying to clean the kitchen.for an odd it 2 hours. But then A butterfly😣😆😆
Well said ored. It is hard, especially when we don't know what the difficulties are until they become a difficulty, and the ones we do know, we can't explain in words. 🍀
This is a true thing. I'm finding the blend of bitter sweet a bit of a tough one.
I've never been one to dress things up. It is tough, in time, it is like you acclimatise, develop masking tactics, become desensitised, find coping strategies. It does get easier 🍀
It will need to get easier for the sake of my neighbours. They must think I'm mental. But it's it's been like that since before all the changes. You do become desensitised.
I am expecting a tough, emotionally complicated but ultimately positive day here too.
My wife has made good progress recently - no longer on any tubes or wires (apart from PEG) and with some consciousness and very limited communication.
It does mean though that she can be taken off the ward into a waiting area and our kids can see her for the first time since they saw her in resus (and were told there was a very real chance she wouldn't make it through the night).
You're dead right that the impact of the brain injury goes beyond just the injured person. I need to devote a load of time/thought/energy to my wife but also not forget about the impact this is having on the kids. And I know I've got good mates who are looking out for me.
That's great that all the tubes are away and that the kids have been able to see their mum. How old are they?It's tough going no joke. And there are days when you feel like so much good has come out of it and days when defeat sets in. Nice to have a group you can speak to where people understand!!!
The world just keeps on turning
Just been told I have a 'small brain Aneurysm'... but that's all I know?!
I just don't want to be here
They say everything happens for a reason
