Tonys breathing and more: So I see they are trying... - Headway


8,762 members11,225 posts

Tonys breathing and more

HopeforTony profile image

So I see they are trying to wean Tony off the ventilator as he’s had his trach just a few days ago. He was always breathing kind of low between 19-20 BUT today he’s been at a constant 25-27 it has been great because I’m told that’s his OWN breath! I’m so proud of him and would hope he CAN soon be able to breathe completely on his own.

Also he continues to open his eyes to his name being called but ya just so difficult to find something he can do to show he can actually hear us. He had blinked and moved his feet so I’ve tried to see if he can stick out his tongue out but I think that’s too hard for him right now..Either way he has made some progress and I’m just so thankful for that so far. I have so much faith in him and so much love! Once he is moved I will try to see about getting a chiropractor, acupuncturist and getting those omegas in his system. It’s so hard to get guardianship of him so that will be a battle in itself. Thanks to all of you always for your continued support I tell Tony all the time that he has friends from here cheering him on!

10 Replies


This is wonderful news!!Keep on fighting Tony!!

Amanda had only had her tracheostomy fitted 4 days before she started breathing by herself and 5 days before doctors started to wean her off the ventilator because she'd started to breath by herself, 24 hours earlier!!

Hopefully if all still goes well Amanda should be completely weaned of the ventilator by tomorrow morning/afternoon.

We're still thinking of you, Tony and his family in our prayers and thoughts 24/7 and send you all our love and hugs as well.

Laura and Amanda's familyxxxx

HopeforTony profile image
HopeforTony in reply to kerr28

Tht sounds great! I really hope it all works out, its so tough but they are fighting to be here with us and fighting HARD! Continued success and support. Prayers for you and Amanda as usual. Thanks alot

kerr28 profile image
kerr28 in reply to HopeforTony

Thank you for your ongoing prayers for us all including Amanda and her unborn son, who we've called Logan.

We'll still keep praying for you all in our thoughts 24/7 and keep sending you all our love and hugs, always as well

Laura and Amanda's familyxxxx

HopeforTony profile image
HopeforTony in reply to kerr28

Thats a beautiful name and I hope one day to have Tonys son as we wished. I wish we could all meet to support each other. Much love xx

As the geordies would say: WOR TONY!!!!!

comeon man you can do this brother :) what a guy :)

I had a tracheostomy and let me tell you in advance girl --- he's going to hate his potentially unsightly scar because I literally hate mine and yeah it's just a scar as people always tell me, but the looks I get from strangers lol wow.

I'm Spanish (mother from Madrid) so my race is not white caucasian and I was told by my plastic surgeon that my race is why I scarred like a spiders web and with Tony being darker skinned, he no doubt might have the same issue.

But screw it, we're not there yet & I don't wanna jinx it, but COMEON TONY!!

Im so not concerned about the scar it was to prove his fight and you shouldn't be concerned either I mean its a badge of honor! We shall see if he wants to get surgery to fix it we will def try! See if you can also! Yes

You are an amazing young woman and because of your Love and strength for Tony he will be protected by all the Love and positive thoughts coming your way. With Love and Gods Blessings Liz xx🇬🇧🙏

HopeforTony profile image
HopeforTony in reply to 1949liz

Aww thanks Liz I really believe he can do it we have so much to do together he’s gotta pull thru thanks xx

Great news. Credit to you for believing in yourself. We all have to take a gamble at times. As you are aware are thoughts are with the two of you. Hopefully things will continue to improve.



HopeforTony profile image
HopeforTony in reply to Mufc

Thanks so much I am trying!! Hope you’re wel

You may also like...