Hi everyone. I'm new to this group and just wanted to reach out.
My husband's bleed was three years ago (AVM in right temporal lobe). He made it through miraculously and life seemed to stabilise, albeit as a 'new normal' way of living. The sad and difficult change has been his ability to cope with challenges; personal, professional or otherwise. He finds it all so hard. Anything that is new to learn, is outside of his comfort zone, or requires him to make a decision based on his own needs leaves him panicked and acutely distressed. He defers all decisions and responsibility for himself to those around him: his boss, me, his family, friends and in turn has become incredibly difficult to cope with or support. Whatever advice he receives has no impact anyway, as he doesn't have the belief or ability to act on it. He remains trapped in in-decision limbo. I cannot decide what is best for him, I can only encourage, listen and reassure. But, fundamentally, it's his life and his health.
He has tried therapy but frequently cancels sessions and has little faith in its benefits. He has tried mindfulness meditation and exercise, which he enjoys, but struggles to sustain these. He has quit his most recent job (work and owning his own home are major triggers) and is on anti-anxiety and anti-depressant meds but at the moment these don't seem to be taking effect. I'm feeling very worried, frustrated, sad and lost. Things have gotten so fraught we're having to live apart at the moment, which is just so awful at Christmas.
Has anyone else experienced this personally or with someone they love post-bleed?