having spent the last 15 months frustrated at the lack of support from family, friends and medical system, many of you know that thanks to a new doctor found who would listen to me, I've been seeing some specialists, and having extra tests done, including another brain scan, and culminating in a visit to the Haematologist last Wednesday.
thanks to two working days notice via mobile text message, yesterday I spent 8 hours at hospital and after blood pressure and temperature checks, then had a full body organ scan, (wco taken from sternum, graphie), bone marrow biopsy, massive lot of blood testing, visit and long chat with a nutritionist, who has given me a raft of papers on dietary advice and suggested a 7 day menu - she wants me to eat 5 times a day, small quantities of various types of meals which will include protein, vitamin s and minerals. I hadn't eaten since before midnight Sunday and was given a tray of food to my choice from menu and in small quantities. A lot of time was spent hanging around inbetween these tests and finally had to have a 2nd large blood sample taken at because doc wasn't happy with results given from 1st in morning.
Finally I was told that when all test results were in and scans look at, that all the specialists involved in my healthcare will have a joint meeting to discuss all elements, my doctor gave a comprehensive report to each and everyone of all that has happened in last 15mths, and a jointly agreed aftercare plan will be sent to my doctor to discuss with me and implement.
Now that's what I call a result which should help me dealing with and improving on, some if not all, of after-effects of BI and my blood disorder.