FND and B12 Jab: Hello all im just... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,899 members3,164 posts

FND and B12 Jab

tabey profile image
9 Replies

Hello all im just wondering is any one else suffering due to lack of B12 and there FND.

I have been told by my Gp surgury my B12 jab is classed as a cosmetic Jab and that i can take over the counter B12 supperments well this was by the lady over the phone

Im finding it more harder to move my energy levels have dropped and im getting more forgetful and i am just 100%-0 in mins.

im 1 week over my jab i do not absorb the B12 tablet thats why since 2010 i had a jab every 3 months.

I got a grilling on the phone saying was i aware of covid and the damage it was doing so i apogised for phoning and left the call.

Just wondering if any one else in thd uk has had this issue the first lockdown i was given my jab

Im in the uk many thanks and please all take care and be safe

Tabe

Written by
tabey profile image
tabey
To view profiles and participate in discussions please or .
Read more about...
9 Replies
MONIREN profile image
MONIREN

I'm sorry that you had that happen to you! I'm Regional Australia, I have B12 injections at my gp, she has never made an issue of it. Even though you have extreme circumstances there with covid, surely medical conditions should still be treated. Maybe the person on the phone was just having a very bad day, don't take it personally. I do hope you are able to continue with your treatment. Take care.

tabey profile image
tabey in reply toMONIREN

Thank you for your reply i really Appreciate it 😀

Tabe

210272 profile image
210272

Do you have any other diagnoses along with FND? If so, I'd ask if it would be considered to be a 'cosmetic' treatment if you didn't have a FND diagnosis in your notes and they were purely working on the basis of another diagnosis. Either way, bullying you about the impact of COVID is not OK and they should not deny you access to necessary medical treatment for any reason other than if there is a shortage of B12 jabs due to reasons beyond their control.

tabey profile image
tabey in reply to210272

Hi and thank you for your reply sadly it is in my notes im b12 vit D folate Deficient due to my Fnd and also i have a leison on the brain stem which also causes me many issue and i have a poor Absorption.I truely do fill bad as i know covid is here and its terrible and of couse if i miss out because people can get treatment id be happy to miss out on it but on the other hand im really truelly struggling with out my jab. And seems im cornered

210272 profile image
210272 in reply totabey

I thought the presence of lesions ruled out FND. But for whatever reason you are deficient in B12 you need treatment. COVID is here and it is terrible but there have been many surveys about how and why it has created hardship for people with other conditions, including delays to accessing regular medical treatments. It's the 'cosmetic' thing that is still bugging me, though ... I'd ask to speak to your doctor and get them to confirm that it is not a cosmetic jab.

Willothewisp81 profile image
Willothewisp81

I'm so sorry you have had this experience with your GP. I know you don't want to bother them when they are fire fighting Covid but I really think you should push for the treatment you are entitled to.

It has been documented that one of the nutritional deficencies that hightens your chance of suffering badly with Covid is B12. By denying you your jab they may well increase the chance of putting more pressure on the NHS services in the long run.

Also it probably won't help as you have problems absorbing B12 but just though I would mention that I take a liquid suppliment called Floradix to get my B12 as I can't absorb tablets due to problems with my gastric system, just in case its worth a try while you are waiting for your jab (it's available online or in lots of health food shops and even my local boots has it now). Good luck!

tabey profile image
tabey in reply toWillothewisp81

Oh thank you , your a life saver i been given the pratice managers email adress by my chemist to fight this as they think its wrong im being declined my jab however like you said they are under huge pressure so me moaning to me seems unfair as i know its a stessful time I shall buy some of that at least it be something to keep my going until i get my jab i cant loose anything by trying abd helping myself

Take care and thanks again

Tabe

MONIREN profile image
MONIREN in reply totabey

I've taken Floridix after an op, found taking it first thing in the morning with warm water is the best.

tabey profile image
tabey in reply toMONIREN

Thank you i have ordered some from good old amazon Tabe

😀

Not what you're looking for?

You may also like...

Fnd flare ups

Hi guys i hope this is the right place im posting on, its took me nearly 3 yrs to actualy write on...
Dinky12 profile image

FND in the UK

Just a brief thought I’ve always had... why are there so many people in the UK for this disorder?...

FND?

Hello all, New here and confused and irritated. I would like to share my story and timeline to see...
LeeMcConnell profile image

FND

Hi I was just diagnosed with FND after having many stroke like symptoms, in and out of the hospital...
Brownie1918 profile image

Life with fnd

Hi all, this is a question that's been in my head over and over for a long time, I have looked at...

Moderation team

See all
FND_ profile image
FND_Administrator
hope4fnd profile image
hope4fndModerator
DNE92 profile image
DNE92Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.