Another tumour 😩

[PaMul]

Sadly the cystoscopy showed another tumour today. The fourth return since 2016 looks like the Mitomycin isn’t working for me. I’m thinking BCG is the next step after the operation on 3 September. Hoping it’s another benign one like the last time 🤞🌻

Hope you’re having a more positive start to the week

[Anniemouse]

Hi

I had four tumors over three years , plus had mitomycin and it didn't work for me ....

lets pray yours is another benign one, sadly mine wasn't so i start a course of BCG next week .

Just seems never ending scopes and treatments but we must keep the faith and share our stories and concerns plus off course any positive treatments and results

[PaMul in reply to Anniemouse]

Thank you 🙏 Anniemouse. Indeed we must keep the faith and share. It does seem like a never ending series of treatments and check ups.

How long did you have Mitomycin for?

The best of luck to you that the BCG works, doesn’t make you feel too awful and is in good supply. I’ll be picking your brains for tips as I have a feeling it’s what’s next for me.

Best wishes and keep us posted

P

[Anniemouse in reply to PaMul]

Hi

I had only one course of mitomycin, and the tumor had returned .so after three biopsies it is now time to start BCG , i have heard good and bad things but i am hoping all will be good and the cancer goes.

And thanks i will let you know

[PaMul in reply to Anniemouse]

Sounds like a similar story we’ve had.

Good luck 🍀